Bruce Willis’ wife, Emma Heming, has revealed that sharing her diagnosis of frontotemporal dementia (FTD) with the world was like a huge weight lifted off her shoulders.
When asked how her life has changed since publicly revealing the Die Hard legend’s health battle in 2023, a year after revealing she suffered from a disorder called aphasia, the actress, 45, said: “Everything changed for the better once we were able to reveal it.” the diagnosis of her.
“I could breathe,” he said while attending the 2024 AFTD Education Conference on May 3. “I could really exhale and feel the weight lift off my shoulders.”
The mother of two continued, “I was able to seek much-needed support for my husband and our entire family.”
Bruce Willis’ wife, Emma Heming, revealed that sharing her diagnosis of frontotemporal dementia (FTD) with the world was like a weight lifted off her shoulders; seen in 2009
On Tuesday, Heming shared images of herself on stage at the conference in Houston, Texas, along with a message about her goal to “raise as much awareness about FTD as possible.”
‘My goal? To one day see a treatment and a cure,” she told her 942,000 Instagram followers.
Additionally, she shared an image of herself, along with three other attendees, with a caption about “feeling grateful” to be “surrounded by other FTD care partners, volunteers, and advocates” with the same goal of supporting each other.
The model has been married to Bruce since 2009 and shares with him her daughters Mabel, 11, and Evelyn, nine.
He shares daughters Rumer, 35, Scout, 32, and Tallulah, 30, with ex-wife Demi Moore.
In March, Heming celebrated his 15th wedding anniversary with Willis with a heartfelt tribute on social media.
‘Today marks our 15th wedding anniversary! And today I can make a decision. I can sink into grief or I can celebrate,” she wrote on Instagram. ‘I call this the ‘remarkable reframing.’ What I know is that there is a lot to celebrate. Our togetherness and connection are probably stronger than ever.”
He continued: ‘We have two bright, fun, healthy daughters. We have a family unit that is based on mutual respect and admiration. And simply, I love and adore the man I married. I am very proud of what we have and continue to create. Happy Crystal Anniversary to us!’
When asked how her life has changed since publicly revealing the Die Hard legend’s health battle in 2023, a year after revealing she suffered from a disorder called aphasia, the actress, 45, said: “Everything changed for the better once we were able to reveal it.” I diagnose her’
“I could breathe,” he said while attending the 2024 AFTD Education Conference on May 3. “I could really exhale and feel the weight lift off my shoulders.”
Additionally, she shared an image of herself, along with three other attendees, with a caption about “feeling grateful” to be “surrounded by other FTD care partners, volunteers, and advocates” with the same goal of supporting each other.
Earlier this year, the retired actor’s wife praised him on Instagram, describing him as a “true gentleman” with a “pure” and “good” core.
“Like you, we just adore him,” she posted on Instagram. ‘What you may not know, but perhaps you can imagine, is that being wrapped in his arms is the safest place in this entire world.
Additionally, he called it “the gift that keeps on giving.”
This spring, Heming rejected a report that said the actor “no longer had joy” in his life amid his health battle with frontotemporal dementia and aphasia.
Heming said in a clip on her Instagram page that she saw a headline that basically said “no more joy” in her husband.
“I can tell you that is very far from the truth,” she responded. “I need society and whoever is writing these stupid headlines to stop scaring people.”
Heming added that there is a need to change public and media perceptions regarding neurocognitive diseases.
In March, Heming celebrated his 15th wedding anniversary to Willis with a heartfelt tribute on social media.
‘Stop scaring people into thinking that once they receive a diagnosis of some kind of neurocognitive disease that: “That’s it, it’s over, let’s pack it up, there’s nothing else to see here, it’s over” – no, that’s all. contrary. of that,’ she said.
Heming said that while the health battle has brought “a lot… pain and sadness” to his family, there is also love, connection, joy and happiness.
She finished by saying: ‘So stop with those stupid headlines… there’s nothing to see here, okay?’
In the caption of the post, Heming said that his “experience is that two things can be true and exist at the same time.”
Heming provided contrasting examples including “pain and deep love,” “sadness and deep connection,” and “trauma and resilience.”
It’s been just over two years since Heming issued a joint statement via Instagram with his two daughters and Willis’ ex-wife, Demi Moore, 61, and their daughters, Rumer Scout, Tallulah, announcing that Willis would be leaving. act in the midst of his aphasia diagnosis.
She talked about how she arrived at her thought process in the post’s title.
“I had to do everything I could to get here, but once I got here, life really started to take on meaning and I had a real sense of purpose,” Heming said. “There is so much beauty and feeling in this story.”
Heming said he has come to understand that “people have not taken the time to properly educate themselves about any type of neurocognitive disease” based on “headline after headline and misinformation propaganda” he has seen on the topic.
In a follow-up post, Heming detailed that the headlines discouraged people who provided care to people living with dementia.
“Caregivers are already struggling in the support department,” Heming said. ‘These headlines that paint this constant picture of doom and gloom about dementia are damaging to them as they try to build their support unit around it. Or you could convince a person who wants to help in the opposite direction.
In the March 30, 2022 statement, they said Willis ‘has been experiencing some health issues and has recently been diagnosed with aphasia, which is affecting his cognitive abilities; seen in 2019
In the March 30, 2022 statement, they said Willis ‘has been experiencing some health issues and has recently been diagnosed with aphasia, which is affecting his cognitive abilities; photographed in 2018
‘I just ask that you consider reframing this negative narrative around dementia. “I would be very kind and generous to the next caregiver and their loved one.”
It’s been just over two years since Heming issued a joint statement via Instagram with his two daughters and Willis’ ex-wife, Demi Moore, 61, and their daughters, Rumer Scout, Tallulah, announcing that Willis would be leaving. act in the midst of his aphasia diagnosis.
In the March 30, 2022 statement, they said Willis’ has been experiencing some health issues and has recently been diagnosed with aphasia, which is affecting his cognitive abilities.
“As a result of this and with great consideration, Bruce is stepping away from the career that has meant so much to him. This is a truly challenging time for our family and we greatly appreciate your continued love, compassion and support.”
They continued, “We’re going through this as a strong family unit and we wanted to appeal to his fans because we know how much he means to you, just like you mean to him.” As Bruce always says, “Live” and together we plan to do just that.’