- Kellie Crameri opens up about the cost of complex regional pain syndrome
- The horse’s owner said she felt like “a prisoner in my own body”
- The disease is known as one of the most painful in the world.
Horse owner Kellie Crameri has opened up about the devastating health battle that left her feeling like “a prisoner in my own body.”
Crameri, co-owner of star horse Fully Lit, has battled complex regional pain syndrome (CRPS), a rare and painful neurological disease, for four years.
Australian doctors told her there was nothing they could do to relieve the excruciating pain she compared to “constant torture”.
However, after ending up at a clinic in Arkansas, USA, she revealed the shocking news that she is now pain-free and has gone into remission.
Crameri revealed that Fully Lit’s win in the $2 million Inglis Millennium earlier this year helped pay for her treatment and thanked legendary horse trainer Gai Waterhouse for “helping me save my life” as a result of the horse’s victory.
“Thanks to Gai Waterhouse, Adrian Bott and RedFox Racing for helping me save my life with Fully Lit’s win in the Inglis Millennium,” Crameri posted online.
‘Today (Friday) the bell rang for remission in Arkansas, USA, for my rare neurological condition that your victory helped fund.
“They say horse racing can change your life, but it has saved my life.”
Kellie Crameri opens up about the devastating cost of complex regional pain syndrome
The horse’s owner has been battling the “most painful disease in the world” for four years
In an emotional statement, Crameri revealed the incredible toll that CRPS takes on those who suffer from the disease.
“CRPS is the most painful illness, accident or injury that can happen to a person, according to the McGill Pain Index,” he said.
‘No other pain a human being can experience compares to the intensity and cruelty that CRPS inflicts on a person.
‘Pain is not only unbearable, it robs you of your body, mind and relationships.
“I’ve had thirteen different surgeries and been injected and swallowed with every pharmaceutical that was supposed to give us hope. Nothing lasted or worked.
‘I became withdrawn. I couldn’t think straight anymore. I struggled immensely with my work and personal life because I was no longer the person I had been and I knew I couldn’t last very long with the person I had become: someone in unimaginable pain who had lost all hope.
‘All the doctors I saw in Australia told me, ‘I can’t help you,’ leaving me very distressed.
‘Trying to navigate the Australian healthcare system became a thankless full-time job.
“I had lost all hope. My days had been filled with screams of pain and an endless stream of tears.
“I had become a prisoner of my own body and was tortured non-stop.”
Australian doctors told him there was nothing they could do to ease the pain, but he has since recovered at a US clinic.
She added that CRPS is commonly known as “the suicide disease” and that she tried to take her life “on three separate occasions.”
The disease affected Crameri’s dominant side of his body, making everyday tasks extremely painful.
Crameri has been pain-free for two weeks and the Spero Clinic claims to be “the only facility in the world” that offers the type of treatment that has helped cure her.
“By relaxing and rehabilitating the nervous system, as well as correcting any other imbalances within your brain and body, we hope to reset and restore proper functionality of the systems within your body,” the clinic said.
