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A brave young woman suffering from a rare disease is forced to live near a hospital because the veins in her face could burst and endanger her life at any moment.
Australian Fatimah Mohamed, 24, was diagnosed with an arteriovenous malformation (a tangle of veins and arteries also known as an AVM) when she was just 10 years old.
The first time he saw a doctor about the problem was when teachers noticed an unusual swelling on the left side of his face.
Although AVM is usually found in the brain or spinal cord, Ms. Mohamed’s is in her left upper jaw and extends to her eye.
Fatimah Mohamed, 24, was diagnosed with an arteriovenous malformation, a tangle of veins and arteries, also known as an AVM, when she was 10 years old.
Ms Mohamed (pictured) can never be too far from a hospital because the AVM could rupture and endanger her life at any time.
For the last 14 years she has had to live with continuous breaks in her face and each time it happens she has to undergo surgery to stop the bleeding.
As of this writing, he has undergone 82 surgeries.
“It only gives me one, two or three months of relief and then it will find new ducts, new growth pathways, it will find new blood vessels and it will rupture again,” he said. A current issue.
An emotional Ms Mohamed recalled a breakup in 2015 that led to a marathon 16-hour surgery to save her life.
“I was turning blue…they called my family and told them to expect the worst, that we don’t know what’s going to happen,” he said.
Doctors removed part of his cheekbone and teeth, leaving him with permanent scars.
Mohamed has since documented his journey on TikTok to raise awareness in hopes of finding a cure.
“It’s like being in a nightmare that you can’t wake up from,” he said.
His mother and siblings, who have been there every step of the way, are stretched thin.
But Mrs Mohamed is still hopeful that help is available.
“I still believe that no matter what I’m going through now, I have to be brave and get through it,” she said.
The Reverend Bill Crews and his charitable foundation have been supporting Mrs Mohamed, saying he was impressed by her bravery when they first met last year.
According to Ms. Mohamed, his support as she shares her story has been “life-changing.”
“No matter what you are going through in life, you should always stay positive, always be brave and always see the light at the end of the tunnel,” he said.
“Because I believe that after every difficulty there is ease.”
To date, Mrs Mohamed (pictured) has been operated on 82 times.