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Boy, nine months old, is fighting a rare form of testicular cancer

A nine month old boy fights a rare form of testicular cancer after his parents have found a lump in his scrotum.

Freddie Burgess-Shardlow has an ectomesenchymoma, a rare and fast-growing nervous system tumor or soft tissue.

Emma Burgess, 36, said she and partner Katie Woodward, 34, found a lump in their son’s testicles for the first time in March.

The couple immediately took their son to the doctors, with doctors initially believing that it was a sign of a hernia – common with babies.

Freddie Burgess-Shardlow has an ectomesenchymoma, a rare and fast-growing nervous system tumor or soft tissue

Freddie Burgess-Shardlow has an ectomesenchymoma, a rare and fast-growing nervous system tumor or soft tissue

Mrs. Burgess and Mrs. Woodward claim that they noticed that his lump had “grown quite a bit” while on vacation in Gran Canaria in May.

However, Mrs. Burgess, a sales representative, said the couple “just put it on the plane under pressure from the cabin.”

When they got home, Freddie was taken to Pilgrim Hospital in Boston – his parents worked nearby in Skegness.

Mrs. Burgess said doctors told them it was an abnormal growth after being referred to the Queen’s Medical Center in Nottingham.

“They said it was a hydrocele and told us it had not fallen by the time he was 18 months old to come back for a checkup,” she said.

A hydrocele is a type of scrotal swelling that is often considered in newborns. It occurs when fluid surrounds the testicle.

Emma Burgess (right), 36, said she and partner Katie Woodward (left), 34, found a nodule in Freddie's testicles for the first time in March

Emma Burgess (right), 36, said she and partner Katie Woodward (left), 34, found a nodule in Freddie's testicles for the first time in March

Emma Burgess (right), 36, said she and partner Katie Woodward (left), 34, found a nodule in Freddie’s testicles for the first time in March

The couple immediately took their son to the doctors, with doctors initially believing it was a sign of a hernia - common with babies (pictured with Mrs. Burgess)

The couple immediately took their son to the doctors, with doctors initially believing it was a sign of a hernia - common with babies (pictured with Mrs. Burgess)

The couple immediately took their son to the doctors, with doctors initially believing it was a sign of a hernia – common with babies (pictured with Mrs. Burgess)

WHAT IS AN ETECTOMEN ENCHYMOMA?

An etectome enzyme is a rare and fast-growing tumor of the nervous system or soft tissue.

Only 64 cases of cancer were reported before 2015, while only eight of them had developed in the scrotum.

Cancer research The UK statistics show that only eight children under the age of nine are diagnosed with testicular cancer on average.

The disease usually affects men aged 15 to 45, with around 2,200 cases diagnosed in the UK every year.

Despite Freddie being reassured and the swelling diminishing, Mrs. Burgess said he was getting worse.

They took him back to a doctor in June who said the clog was a solid mass. He underwent a scan on June 27.

Eventually he got the lump and his right testicle removed five days later, so that doctors could examine the masses.

His parents were told that it was unlikely that it was cancer because he was too young – but two weeks later he was diagnosed with ectomesenchymoma.

Only 64 cases of cancer were reported before 2015, while only eight of them had developed in the scrotum.

Freddie started nine debilitating rounds of chemotherapy after the diagnosis, which he has every 21 days.

His parents said the emotional impact had been huge. They stayed at Billy’s House in Nottingham.

It is managed by child cancer organization Clic Sargent and offers families a free place to stay while their son or daughter is in the hospital.

Mrs. Woodward said that despite chemotherapy, Freddie is still a “happy little boy.” “He hasn’t been that bad,” she said.

His parents were told that it was unlikely that it was cancer because he was too young - but two weeks later he was diagnosed with ectomesenchymoma

His parents were told that it was unlikely that it was cancer because he was too young - but two weeks later he was diagnosed with ectomesenchymoma

His parents were told that it was unlikely that it was cancer because he was too young – but two weeks later he was diagnosed with ectomesenchymoma

“He’s still happy. But it was heartbreaking. We try not to cry around him so he doesn’t get upset.

‘Sometimes he has times when he doesn’t want to eat. But he is still a happy little boy. He flirts with all the nurses and he has his favorite. ”

His older sister, Holly Burgess, 19, who lives in Arnold, Nottinghamshire, raises money for both the Queen’s Medical Center and Clic Sargent.

She said: “He has been brilliant. It was hard, but you just have to pick yourself up and keep going.

“I feel OK for the abseiling, getting nervous, but I see Freddie and I am reminded of the reasons for doing it.”

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