A girl who suddenly fell into a prolonged coma despite “all medical evidence showing she should be awake and well” has been diagnosed with a rare illness.
The girl’s mother, Allanah Alison (aka Allanah Harris), shared a heartbreaking update on Sunday explaining that her daughter Daisy has tuberous sclerosis and has been in a comatose state for over 100 hours.
The disease causes noncancerous tumors to grow in the brain and other vital organs, which in turn causes other complications such as seizures and developmental delays.
The lifestyle influencer told her 223,000 followers that her once “bright and cheerful” son was diagnosed with the condition in June after noticing what she suspected were absence seizures, which appear as “staring periods” in children.
The mother of four said these attacks became more frequent, with Daisy having multiple seizures a day and when she insisted on being examined at the hospital “she was diagnosed with epilepsy on the spot”.
Later, after performing a brain scan, doctors discovered that the cause of the epilepsy was tuberous sclerosis, and that the disease also caused other brain disorders, including focal cortical dysplasia, infantile spasms and encephalopathy.
The girl had recently been sleeping up to 22 hours each day until she fell into a coma a few days ago.
“Daisy has been unresponsive for over 100 hours and we have no idea when she will choose to wake up, it could be tomorrow or in six weeks, it’s something that will only be safe for her when she is ready,” Alison said.
Queensland mum Allanah Alison has shared a heartbreaking update about her baby daughter Daisy
The young woman has fallen into a coma and doctors do not know how or when she will wake up.
The Queensland woman said her daughter has had “countless injections and blood tests in her sleep” and doesn’t even blink.
‘Unfortunately, there are no medications or stimulants that are safe to use to wake Daisy up.
Even after Daisy decides to wake up, we still have a long way to go in trying to figure out what is causing this level of sleepiness and this slow brain activity.
Ms Alison said doctors are already “doing everything they can” to try to understand why Daisy has fallen into a coma.
‘All the medical evidence so far shows that Daisy should be awake and well, with the exception of course of her severe developmental delays, but sadly that is not the case.
‘Investigations are ongoing and information about Daisy has been quickly passed on to other hospitals not only in Australia but in other countries to help find answers.’
The lifestyle influencer said doctors are searching globally for answers about Daisy’s condition.
In addition to this, doctors had diagnosed Daisy with tuberous sclerosis four years after her older sister died.
The devastated family thanked their supporters and well-wishers.
TO GoFundMe It was launched by Daisy’s grandmother to help pay medical bills.
“This has taken a financial toll and made it difficult to arrange care for the other three children due to the amount of time they spend in hospital,” Karen George said.
‘Allanah and Brock will need to move to the Sunshine Coast where the support network is significantly larger.
‘No contribution is too small and will help this beautiful family.
“Any excess funds available, they intend to donate to the RMH and TSC foundations,” he said.
