A mother revealed how her seventeen-month-old twins defied the chances after doctors had given them a zero percent chance of survival.
Claire Mowforth, 34, was told that her baby had osteogenesis imperfecta or a brittle-born disease while she was still pregnant.
Scans showed the youngsters broken bones in the womb, with doctors warning the mother of three and her husband Phil, 35, the twins would not make it.
Against all odds, Amelia-Grace and Hope-Elizabeth Mowforth were born on April 4 last year – but each had 15 broken bones.
With Amelia with five broken ribs and Hope weighing just 2 pounds (0.9 kg), doctors maintained their chances of survival & # 39; slim & # 39 ;.
The twins, van Hull, moved on again and were home within four months with their parents and sister Grace, seven.
However, life is still & # 39; hard & # 39 ;, where the girls run the risk of fractures every time they sneeze, roll or change their clothes.
Mother Claire Mowforth has revealed how her seventeen-month-old twins Amelia-Grace and Hope-Elizabeth Mowforth defied the chances of survival even though she & # 39; of glass & # 39; were made. Mrs. Mowforth was recently pictured with the twins, her oldest daughter Grace and husband Phil
The twins (pictured left as newborns) were each delivered on April 4 last year with 15 broken bones. Amelia weighed 5 pounds (2.2 kg) and had five broken ribs. Hope only weighed 0.9 kg and stopped breathing shortly after birth. Scans (right) revealed that they have broken bones in the womb
Speaking of the condition of her daughters, Mrs. Mowforth said: & It is as if they are made of glass.
& # 39; In the past, we were constantly wondering if we were crying whether it was a normal baby cry or whether they were hurt by a new fracture.
& # 39; We were almost afraid to touch them, because even the slightest movement can result in a broken bone.
& # 39; Everything from sneezing or coughing to an awkward role or fall can cause fractures & # 39 ;.
Mrs. Mowforth and her husband, a network administrator, was overjoyed when she became pregnant with twins.
The couple, who are also parents of seven-year-old Grace, had tried for years to become pregnant again through IVF.
Their joy, however was short-lived when a 13-week scan revealed that the baby's shared a placenta. This is unusual and can lead to complications.
Doctors decided to keep an eye on the twins with extra scans. These showed that one of the girls had a soft skull and had endured both fractures in the womb.
The doctors reportedly gave the girls a & # 39; zero chance of survival & # 39 ;.
It is unclear what type of OI the pair has – but most babies with type two will not survive, according to Children's health.
Mrs. Mowforth, a former counselor, said: “We tried to stay positive, but we were told that the condition they had could be deadly.
& # 39; Thoughts from funerals occurred to us that were unbearable. & # 39;
The girls defied the chances of survival, but life is still & # 39; hard & # 39 ;. The youngsters (recently pictured) run the risk of fractures whenever they sneeze, roll over or change their clothing
Hope struggled with breathing (left) and was placed in a plastic bag to keep her warm (right)
Despite everything they have experienced, the twins surprise their parents every day. Amelia (right) was able to roll over after six months and sat up by month 10. Hope (left) & # 39; struggled more & # 39;
WHAT IS OSTEOGENESIS IMPERFECTA?
Osteogenesis imperfecta (OI) is a genetic condition that causes a patient to break bones with & # 39; minimal impact & # 39 ;.
It is caused by missing, reducing or low-quality collagen.
Collagen is a protein that is responsible for bone structure.
Defects cause weak bones and break easily.
OI is present at birth and can be mild or severe. It is thought that about one in 15,000 people strikes.
Symptoms can be:
- Fractures with minimal force
- Bones with & # 39; altered shape & # 39 ;, such as bent legs
- The whites of the eyes appear blue or gray
- Unusually flexible joints
- Joint or bone pain
- Hearing problems, usually after puberty
- Short stature
Most OI patients are treated through physiotherapy and symptom management.
Medication can reduce pain and increase bone density.
Source: Great Ormond Street Hospital
With Mrs. Mowforth's due date, the couple approached Hull Royal Infirmary.
Doctors explained that due to the condition of the twins, their bones were likely to break during birth and that they should be taken to neonatal intensive care immediately.
& # 39; We have managed to reach 35 weeks, & # 39; said Mrs. Mowforth. & # 39; The girls were born on April 4, 2018. & # 39;
Amelia weighed 5 pounds and Hope only 2 pounds.
& # 39; They were such small things and so fragile, & # 39; said Mrs. Mowforth. & # 39; They were taken directly to NICU and placed on breathing equipment. & # 39;
Amelia was born with five broken ribs, thought to be caused by labor.
Although she recovered and was home two weeks later, her sister was less fortunate.
& # 39; Amelia first came home, we really struggled with our time between home and hospital – sometimes it really tested our relationship, & # 39; said Mrs. Mowforth.
Hope stopped breathing when he was two weeks old. She was later diagnosed with heart failure, high blood pressure and chronic lung disease.
After being treated with & # 39; heart medication & # 39; and medication to lower her blood pressure, Hope finally went home at four months old.
& # 39; Life is good, hard but good, & # 39; said Mrs. Mowforth.
& # 39; We had to learn different treatment methods, but only placing limbs in clothing caused a break in Hope.
& # 39; Another break occurred while performing a normal blood pressure check.
& # 39; Seeing the girls with fractions is heartbreaking, we are constantly on the lookout with every move.
& # 39; We still have relatives today who are too scared to hold them, which is very worrying. & # 39;
Despite everything they have experienced, the girls are doing well. & # 39; Every day they surprise us, & # 39; said Mrs. Mowforth.
& # 39; After six months, Amelia was able to roll and at the age of 10 she was able to get herself in the sitting position. Hope struggled more. She can now roll on her stomach.
& # 39; They have conquered so much and are really our little miracles. & # 39;
The twins have rods in their legs to help strengthen and stretch their limbs when they are about three years old.
They will also undergo infusions of the drug pamidronate every three months to prevent loss of bone mass.
The family is provided with medical and sensory equipment by the charity Nice 2b Nice. Find out more here.
The parents had to learn how to handle & # 39; different ways & # 39; with their newborns (photo) given their condition. Some family members are still & # 39; too scared to hold them & # 39;
Hope (left) and Amelia (right) have placed bars in their legs to help strengthen and straighten their limbs when they are about three years old
Hope (at the hospital) was home later than her sister, who tested & # 39; her parents' relationship & # 39;
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