The student from Melbourne explains what it's like to have a skin condition that looks like third-degree burns
& # 39; Don't go too close, it can be contagious & # 39 ;: educational student who suffers from a rare disease that causes her skin to break out in painful burns and blisters reveals the cruel insults she receives from strangers
- Educational student Nurbanu Istar, 23, has the rare disorder epidermolysis bullosa
- She faces a daily struggle to prevent itching, infections and discomfort while walking
- The young woman is one of the approximately 1,000 Australians who suffer from the condition
- Nurbanu said people confuse her for a burn victim or someone with chickenpox
An instructive student who lives with a rare skin condition compared to third-degree burns has revealed that even the slightest irritation can cause her skin to peel and blow.
Nurbanu Istar, 23, has been suffering from epidermolysis bullosa (EB) since birth and is struggling with a daily struggle to prevent itching, infections and discomfort while walking.
One of the biggest challenges facing the Melbourne woman is fighting through social stigma – with strangers assuming she is a burn or has chickenpox.
Educational student Nurbanu Istar, 23, has revealed how even the slightest irritation can cause her skin to peel and blow due to a rare skin condition compared to third-degree burns
& # 39; Unfortunately, people often see someone else watching, they can judge quickly & # 39 ;, she said.
"" Oh my god what is that "," look at her "and" don't go too close it might be contagious "- these are just some of the comments I grew up," Nurbanu said.
EB affects approximately 1,000 Australians, but although the genetic condition requires constant skin management, it cannot be spread from person to person.
The most difficult experiences of Nurbanu were, among other things, that he could not walk for days after developing large blisters on her feet through sightseeing in Sydney.
What is epidermolysis bullosa?
Epidermolysis bullosa (EB) is a disease that affects 1,000 people in Australia (about one in 25) and 500,000 people worldwide
Children with EB are sometimes called butterfly children because their skin is as fragile as the wings of a butterfly
It is compared to living with third-degree burns
Sufferers must connect themselves every day to protect wounds
The condition is caused by a genetic mutation that leads to a protein deficiency that is needed to bind the skin together
There are many versions of EB, with some blistering after exposure to the sun
Nurbanu's most difficult experiences included being unable to walk for days after developing large blisters on her feet through sightseeing in Sydney (some of her blistering in the photo)
& # 39; My family decided to go around Sydney Harbor and the city of Sydney, & # 39; she said.
& # 39; We have been to many places where we had to walk a lot. I got small blisters on my feet and within a few days it came to a point where I could not walk. & # 39;
Since she has had to deal with more severe blistering as a child, the high school teacher has learned to struggle with her condition as well as possible.
She doesn't exercise much because of the risks for her skin and the fact that she is also visually impaired and cannot wear high heels.
Nurbanu has also worked as a makeup artist and now has a better understanding of the foundation that she cannot use.
& # 39; When I was about 15 or 16 years old, my mother bought me my very first foundation from a drugstore, & # 39; she said.
Nurbanu (photo) has suffered from epidermolysis bullosa (EB) since birth and is struggling with a daily struggle to prevent itching, infections and discomfort while walking
She doesn't exercise much because of the risks to her skin and the fact that she is also visually impaired and cannot wear high heels
Nurbanu has recently worked as a makeup artist and now has a better understanding of the foundation that she cannot use
& # 39; It looked great in the store, but once I got home and started using it on my face, my skin started to blow and it felt very itchy. & # 39;
Nurbanu had responded to a chemical in makeup, but because of her recent career, she now knows she must use the vegan foundation to prevent her from getting a reaction.
Despite her sometimes debilitating condition, the 23-year-old said she chose to stay positive and embrace the hand she was given.
Despite her sometimes debilitating condition, the 23-year-old said she chose to stay positive and embrace the hand she was given
& # 39; There is a quote that I love: & # 39; life is tough and so are you & # 39 ;, she said.
& # 39; Something I grew up was that everyone is different and this is what made them unique.
& # 39; I always tell people who are going through difficult times, if you want to get the best out of life, you are always positive, even in times when you think you can't be. & # 39;
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