A teenager whose moles cover her whole body has revealed how people have accused her parents of burning her as a baby.
Amba Smith, 17, was born cutis marmorata telangiectatica congenita (CMTC) and Sturge-Weber syndrome (SWS).
CMTC gives her skin a red, marbled appearance. SWS is responsible for the wine stain on her face.
Miss Smith was admitted to the hospital – for eight months at a time – because her disorders caused lesions in her body that affected her spine, kidneys, liver, and stomach.
She has been bullying all her life because children asked if she was on fire and accused her of faking her illness for attention.
Her parents, Kelly Smith, 43, and Scott Smith, 40, were confronted with embarrassing comments from strangers accusing them of burning her or burning her in the bath.
Despite the fact that her self-confidence is growing up, Miss Smith speaks openly about her condition and is an aspiring makeup artist.
Miss Smith suffers from two different rare conditions: Cutis marmorata telangiectatica congenita (CMTC) and Sturge-Weber Syndrome (SWS). Both cause red spots all over her body and SWS has caused glaucoma in her left eye
Amba Smith, 17, who has a birthmark covering her entire body, has revealed how people would accuse her parents of burning her as a baby. Pictured with her mother, Kelly Smith, 43
Parents, Kelly Smith, 43, and Scott Smith, 40, were confronted with offensive comments from strangers accusing them of having their daughter burned or burning her in the bath
Despite her shattered confidence, Miss Smith speaks openly about her condition and is an aspiring makeup artist who uses her birthmark as a unique design (pictured)
Miss Smith from Lincoln said: & I was in the third year when the bullying started. I still remember it so clearly now.
& # 39; People would say things about my skin and ask if I was in a fire or why my parents had sunburn.
& # 39; Some people would even ask if my parents burned me in the bath.
WHAT CONDITIONS WERE HANNAH SMITH & # 39; S BIRTHDAY ITEMS?
Cutis marmorata telangiectatica congenita (CMTC)
CMTC is a birthmark that affects the blood vessels in the skin, creating a net-like pattern on the skin with a "marbled" appearance.
It is not entirely clear what causes CMTC. It probably develops early in fetal life when the blood vessels form. It is not passed on from parent to child. It is unlikely that this was caused by something that happened during pregnancy.
The skin pattern varies in color from blue to purple and can become more visible in extreme temperatures.
The pattern can affect a part of the body – usually a leg, but sometimes also the arms and torso. The pattern rarely affects the face and scalp.
Fewer than 300 cases of CMTC have been reported in the medical literature, according to the National Organization for Rare Diseases.
Sturge Weber Syndrome (SWS)
SWS is a condition that affects the skin, brain and eyes. It is named after the doctors who described it in the late 19th century and the beginning of the 20th century.
A port wine stain is a vascular birthmark caused by abnormal development of blood vessels in the skin. It can occur anywhere on the body, but in SWS it affects the skin around the forehead and / or scalp.
Like the port wine stain that affects the skin, it will also include an extra layer of blood vessels across the surface of the brain, the angioma. The angioma may be associated with epileptic seizures and developmental problems
About 80 percent of children with SWS have epilepsy and about 60 percent of children with SWS have developmental and learning difficulties delayed.
It is not known how many people are diagnosed with SWS, but it is a rare condition.
It can affect all ethnic groups and is equally common among boys and girls. Children with a port wine stain on both sides of their scalp or forehead are more likely to have SWS.
An estimate places the incidence on one in 20,000-50,000 live births, according to NORD.
Source: Great Ormond Street Hospital
& # 39; My condition would cause my stomach to swell when I was younger, so other children would call me fat even when I was eight. & # 39;
Miss Smith's mother was always so upset by people's comments that she didn't want to go out.
Mrs. Smith, also Jordan Smith's mother, 21, said: “Unfortunately, people are so cruel.
& Amba I always walked in the street with Amba in her pram or pram and I received comments such as how dare I leave my child to be burned in the sun or have I burned her myself.
Because she was so young, Miss Smith did not understand that she was not like other children.
She said: & # 39; I thought my skin was just normal and there were many other people like me.
& # 39; I thought I was the only one at my school.
& # 39; But as I grew older and learned more about my condition, I realized that it was really rare. We go to many meetings in hospitals and I have never seen anyone else with a birthmark like me. & # 39;
Like the skin, Sturge-Weber affects the brain and eyes, causing glaucoma in Miss Smith's left eye. About 60 percent of children with SWS have learning or developmental problems.
The birthmark on her face, also known as a port wine spot, is caused by abnormal development of blood vessels in the skin.
The most important feature of CMTC is a net-like pattern on the skin that gives a marbled appearance, caused by a birthmark that affects the blood vessels.
The two conditions, both of which are so rare that there are no clear prevalence statistics, overlap each other and give Miss Smith the red spot everywhere.
Among the areas of the affected skin, Miss Smith can suffer from lesions that can attack her organs, such as her stomach.
This is not a common symptom of any of the disorders, and doctors are not sure why Miss Smith is affected in this way.
In year nine, Miss Smith was hospitalized for eight months when a lesion on her stomach developed, leaving her in painful pain and unable to eat.
Miss Smith said: “I have missed so much education and people I thought my friends accused me of lying and faking for attention, but I was in a lot of pain in the hospital.
Miss Smith's mother was always so upset by people's comments that she didn't want to go out. Pictured as a little girl when she didn't realize that her skin was different
The birthmark on Miss Smith's face, also known as a port wine spot, is caused by abnormal development of blood vessels in the skin in SWS. Presented as a child with Mr. Smith
As a child, Miss Smith said she was bullied and children accused her of lying about being sick to get attention. Pictured, Miss Smith as a baby
& # 39; The only thing I wanted was that I would lead a normal daily life outside of it. Sometimes I hated my birthmark because I had taken it all away from me. & # 39;
Although she had made friends in high school, Miss Smith said she turned against her and that her self-confidence plummeted while suffering from anxiety.
She was transferred to a hospital school for her GCSE & # 39; s and despite being hospitalized again in May 2018 and having to take her exams from her hospital bed, she succeeded and got a place in college.
Since starting a Level 2 beauty treatment course, Miss Smith has great confidence and has made many new friends who fully accept her birthmark and tell her how beautiful she is and without makeup.
As a child, Miss Smith said she was bullied and children accused her of lying about being sick to get attention. Now pictured without makeup
Mr. and Mrs. Smith have seen their daughter endure numerous hospital appointments and procedures since she was born with the conditions (pictured)
The most important feature of CMTC is a net-like pattern on the skin that a & # 39; marbled & # 39; appearance caused by a birthmark that affects the blood vessels
Miss Smith said that makeup was her coping strategy. Pictured, her birthmarks covered
Now, instead of using makeup as a way to hide her skin, Miss Smith can go out without makeup more often and even include her birthmark in her appearance.
She said: & # 39; When I took off my makeup, everyone came to me to tell me how beautiful I am without putting on my makeup. It made me so happy.
& # 39; Since that day I go out more and more without makeup. I have a lot more confidence just to be myself.
& # 39; Make-up was initially my coping strategy and a way to hide my birthmark and change myself, but now I see it as an art form and a way to show people what I can do .
& # 39; I even started to include my birthmark in my makeup. It looks like I put a love heart around it. I am starting to feel pretty proud that I am so unique. & # 39;
Mr. and Mrs. Smith have seen how their daughter has endured numerous hospital appointments and procedures since she was born with the conditions, as well as with school bullying.
Miss Smith has had laser treatment on her face to slow down the birth of her birthmark. Port wine stains are getting thicker and redder through the lives of people. Pictured, treatment three years ago that caused the purple dots
Mrs. Smith said that her daughter (second left) is a & # 39; great example & # 39; and admitted that they were worried about her future. Pictured, the family including brother Jordan Smith, 21 and Mr. Smith
Miss Smith is planning to study later this year as a makeup artist in London
Miss Smith said: & I even started to include my birthmark in my makeup, it looks like a love heart is going around it. I am starting to become quite proud to be so unique & # 39;
They admit that there have been times when they were worried about the future of their daughter.
Mrs. Smith said: & # 39; It was very difficult sometimes to see someone you love, through all the pain and treatments. You only wish you could take everything from her.
& # 39; She has had trouble making friends with past experiences and is very worried about people she doesn't know. & # 39;
Miss Smith plans to become a makeup artist in London later this year, making her parents & # 39; so proud & # 39; to be.
Mrs. Smith said: & She has done so much with her so much and as her parents we are so proud. She is a true inspiration.
& # 39; Amba is a great example for everyone who has a hard time in his life. I know as her mother that she will never give up and that she will lead a great life.
& # 39; Amba is so beautiful and I am so proud of her for everything she has achieved in her small life.
& # 39; Whatever she's thrown, she has stayed as strong as she can and went on living. & # 39;
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