A & # 39; great toddler & # 39; may have only three weeks to live after doctors have missed a deadly brain tumor & # 39; & # 39 ;.
Evie Mitchell never received an MRI scan that could have identified her growing brain tumor. Now her distraught parents have exposed their pain because they claim it should have been noticed earlier.
Lauren Jenkins and Alfie Mitchell have been told that Evie must be operated on immediately.
For the past 15 months, the toddler, born with Turner syndrome, has been monitored by health care professionals and despite the baby being constantly & # 39; limp & # 39; was unable to move her limbs, she did not receive an MRI.
Little Evie Mitchell (pictured above after surgery to reduce fluid in the brain) can only have three weeks to live if she is not operated on immediately
In November 2018, Lauren posted this cute photo of her daughter Evie after attending her & # 39; first parade & # 39; (left). Her parents visited the toddler at every step (right)
Her mother Lauren, 25, now feels that her family has failed at Royal Cornwall Hospital and is praying that their daughter will pass through it.
Lauren said she brought Evie to Bristol Children's & # 39; s Hospital a few weeks ago for a planned gastrostomy. This meant the insertion of a nutritional device into Evie's stomach, but the staff were worried during her assessments prior to surgery.
Lauren said the staff had noticed that Evie's oxygen levels were low and that she was testing more on the toddler because she had a developmental delay, as well as problems with weight loss.
She said to Cornwall Live: & # 39; She also has a chromosome disorder that she thought caused her problems. They did the tests and were still not happy and thought something was wrong because she was paralyzed and her limbs were not moving.
Evie (left and right in the hospital) was diagnosed with Turner syndrome at her birth and has had constant supervision of medical professionals
Lauren said she cannot describe the devastation she and her family feel (Lauren and Evie hand in hand at the hospital
Still smiling: despite her condition, Evie continues to smile and her mother Lauren described her as a vibrant & # 39; little girl & # 39;
& # 39; They did an MRI scan and took me to a room to tell me that she has a final stage tumor and that 98% of it is in her brain stem with a little bit at the top of her spine.
& # 39; She has had a lot of input at Treliske and two recordings due to her extreme weight loss and acid reflux. She went to the Gwithian Unit for a stay of eight and ten weeks and had fixed appointments. & # 39;
Evie also has other problems, such as extreme vomiting, and Lauren said that the tumor had continued to grow for a year despite intense input from healthcare professionals.
& # 39; There are many people in the community and many people in the hospital who are involved with her and many people have failed to do further research. She could sit back and hold her head up and everything when she was younger – then it stopped because the tumor was clearly growing.
Alfie posted a gripping tribute on Facebook to his daughter, who received the title & # 39; one man and his daughter & # 39; had received
& # 39; She saw so many people in Cornwall and they watched her here once (in Bristol) and said: & # 39; let's do an MRI & # 39 ;. They told us that she still has three weeks to live without emergency treatment.
& # 39; We now run the risk of losing our child if we come here for a relatively standard operation. I cannot put into words how devastated we are. & # 39;
What is Turner's syndrome?
Turner syndrome is a chromosomal disorder that changes development in women.
Women with this condition tend to be shorter than average and are usually unable to conceive a child (infertile) due to the absence of ovarian function.
Turner syndrome is a chromosomal disorder related to the X chromosome.
Osteoporosis can occur due to a lack of estrogen.
Source: National Human Genome Research Institute
According to Lauren, a month prior to discovering her daughter's brain tumor, the family hospital consultant referred her to a community pediatrician because she was starting to make progress.
Lauren now says she can't believe & # 39; that her family is there and does not understand how the circumstances of her daughters have been overlooked.
& # 39; I don't understand how this was overlooked. We had people at the top of their game and they never thought to investigate her symptoms.
& # 39; And now she has a tumor at the stage where she doesn't even want to operate because it's so big. We are really angry and we want people to know. It is not that they have found a small tumor – it has been growing for a year.
& # 39; They have never done a MoT or something as small as an MRI and it has put us in this situation. We now have two options and they have to take a biopsy and try to test what it is, or they can go all-in and try to remove it, but it's incredibly large and could be in the worst place. & # 39;
She said the team put all the surgeons in a compromising position, with a very large tumor in the worst place, and said they should consult other hospitals for help.
Lauren said she was bringing Evie to Bristol Children's & # 39; s Hospital, where she found that Evie & # 39; s oxygen level was low
& # 39; Only our local hospital had an MRI – even three months ago and we could have had three more months with Evie.
& # 39; If she hadn't had that much input, it would be different, but she involved 20 different professionals in her care. She was so overlooked and our family and friends were also destroyed.
& # 39; There are no words to summarize how we feel. The team is in a big turmoil here because they don't know what to do and they are angry – they are not used to doing an MRI scan and finding a tumor that big. & # 39;
Evie has now undergone emergency surgery to reduce fluid in her brain, and Lauren says her family had put all their trust in a hospital that & # 39; abandoned it & # 39 ;.
& # 39; We are so grateful that we came up when we did. Even longer and she probably wouldn't be here. She is quite resilient, bless her heart – she has lived with this and I don't know how she still lives.
& # 39; She's a great girl and she wants to be here. She is pretty bubbles despite the fact that she can't really talk or walk. She is really loving. She is our child, so we will be biased, but she is so special.
& # 39; She's so good, especially when she thinks she's in so much pain. & # 39;
Evie & # 39; s mother Lauren Jenkins said she feels like Royal Cornwall Hospital (above) has failed her daughter
Lauren admitted that both her and her partner Alfie & # 39; terrified & # 39; to be.
& # 39; All we do is for her. She is my only child and I pray to God that I will not lose her.
& # 39; We baptized her yesterday and we were in a hurry because we thought they were going to operate, but they had no faith in the ministry. They don't want to make massive decisions.
& # 39; We are really angry and disappointed. They did everything but an MRI and all markings were there. We will never be able to take our daughter to that hospital again if she passes through it and I pray that she will. & # 39;
Their new life is going to be hard to get by and Lauren said it's just & # 39; too much & # 39; is.
& # 39; I don't even want to go back to Cornwall. It's my home, but I don't even want to go back. The support was great. We are grateful for our friends and family. & # 39;
A spokesperson for the Royal Cornwall Hospitals Trust said: “We are in contact with the Bristol Children & # 39; s Hospital team that takes care of Evie and our thoughts are very much with Evie's parents in such a fearful and anxious time.
& # 39; It is impossible to say that without a detailed overview of Evie's appointments and medical history that we will perform, or any opportunity to diagnose her condition, has been missed.
& # 39; We will agree to meet Evie & # 39; s parents as soon as they can talk to us so that we can review Evie's care with them and answer any questions. & # 39;
If you would like to donate, go to Evie's Just Giving page here. The page has currently raised £ 520 from its £ 1,000 target.