The mother of Tafida Raqeeb thanks Italian doctors for & # 39; the belief in the recovery of my daughter & # 39;
The mother of a seriously disabled five-year-old girl who was flown to an Italian hospital to continue seeking life support is seeking citizenship for her daughter after winning a historic legal battle.
Tafida Raqeeb was moved Tuesday from London to Gaslini Children's Hospital in Genoa after parents Shelina Begum (39) and Mohammed Raqeeb (45) won a fight with the Supreme Court earlier this month.
Ms. Begum, from Newham, East London, thanked the hospital today for believing in her daughter's recovery. during a press conference after being taken to Italy by chartered plane.
She added that the transfer & # 39; extremely smooth & # 39; and that Tafida – who suffered a traumatic brain injury – was stable and & # 39; turned her head from left to right & # 39 ;.
Tafida Raqeeb was moved Tuesday from London to Gaslini Children's Hospital in Genoa after parents Shelina Begum (right), 39, and Mohammed Raqeeb (left with his wife), 45, won a fight with the hospital's bosses earlier this month with hospital bosses
Mrs. Begum, from Newham, East London, thanked the hospital today for & # 39; faith in her daughter's recovery & # 39; during a press conference after being taken to Italy by chartered plane
& # 39; I visited Tafida this morning, she is stable, she was awake, fully awake, and turned her head from left to right. I told her Mom and Dad are here and the whole family is coming, & she said.
She added: & # 39; I just believe that since Tafida is in Italy, it makes sense if she has Italian citizenship. & # 39;
She said the family is offering crowdfunding for the treatment of Tafida, but the money & # 39; should not run out & # 39 ;.
& # 39; We do have financial sponsors. If we cannot collect the money, the financial sponsors come in and pay for the treatment. & # 39;
She said she didn't want to reveal how much the hospital is charging.
& # 39; I hope Tafida sees her getting better every day, something she has done for the past eight months, & # 39; she added.
Tafida (photo), an externally healthy, happy girl who had just started school, was damaged by the left hemisphere in February when a blood vessel burst in her brain
Mrs. Begum said she was grateful to the & # 39; nurses in the UK who also did a fantastic job of taking care of Tafida & # 39; and for the public for the & # 39; love and support and warmth they have shown to Tafida & # 39 ;.
She said she felt emotionally exhausted & # 39; felt and added: & i'm sure everyone knows that Tafida was a very happy, vibrant child before February, and in February our lives were actually turned upside down.
& # 39; She wasn't born unwell, she wasn't born with a condition, this thing just happened suddenly. & # 39;
Tafida & # 39; s mother and her father had said that life support treatment should continue and that their daughter should be taken to a hospital of their choice.
Tafida arrives at Genoa airport in Italy before being transported to the city's Gaslini Children's Hospital after her parents have received permission at the High Court in London
Bosses at the Royal London Hospital disagreed.
Specialists at the hospital said that further treatment would be useless because the young person had permanent brain damage, was in a minimally conscious state and had no chance of recovery.
Mr Justice MacDonald ruled in favor of the parents of Tafida after analyzing evidence during a trial at the High Court in London.
They said they thought they had a & # 39; quality of life & # 39; had.
They said they wanted to take Tafida to a country where they would receive life support treatments and where doctors' views on the quality of life were in line with theirs.
Lawyers representing the boss of the Royal London Hospital told Mr. Justice MacDonald that the blood vessels in the brain of Tafida were interfered with.
Mrs. Begum said she was grateful to the & # 39; nurses in the UK who also did a fantastic job of taking care of Tafida & # 39;
They said that the young person could not swallow, taste, see, breathe, or experience & # 39; touch in large parts of her body.
The judge was told that all doctors asked for an opinion, including Italian doctors and a specialist on Great Ormond Street in London, agreed that Tafida would never come out of a ventilator and would always need artificial help.
He heard that specialized doctors thought that Tafida & # 39; beyond experience & # 39; used to be.
On February 8, Tafida was rushed to the hospital after collapsing just after 5 a.m. She told her mother that her head ached before she lost consciousness and that her 14-year-old brother was resuscitating while waiting for an ambulance.
Her parents have camped beside her for eight months and have the & # 39; pain & # 39; everyday because their daughter has only one percent chance of living
Tafida underwent a seven-hour operation at King & # 39; s Hospital in London and was in a coma. The consultant was honest outside the operating room.
& # 39; He told us: & # 39; She has only one percent chance. Most likely she will die on the table & # 39; & # 39 ;, Shelina recalls. & # 39; We were terrified. & # 39;
But while Tafida survived, her condition was unpredictable.
Her heart stopped the morning after the operation. She went into a coma and the family was told that if she hadn't died before noon, she would die within 24 hours.
But to the delight of the family, a brain stem test showed that although Tafida had sustained a brain injury, she was not brain dead. & # 39; That was the best moment & # 39 ;, Shelina recalls.
After two weeks, Tafida opened her eyes for the first time. The family started investigating the condition. A birth defect, AVM is caused where blood vessels do not form correctly and can rupture.
In the brain, the effects are comparable to a major stroke. Approximately ten babies per year are affected in England, although the condition is only picked up later in life.
Her heart stopped the morning after the operation. She went into a coma and the family was told that if she hadn't died before noon, she would die within 24 hours
The family learned that AVM patients such as Tafida end up in a deep coma, but can slowly develop as the brain makes new connections.
Tafida was transferred to Royal London Hospital in April. In June the medical staff concluded that further treatment was useless. & # 39; They put us down and said: & # 39; See, we take the decision away from you. More treatment is useless & # 39; & # 39 ;, Shelina recalls. & # 39; They would take out her breathing tube and it would be. & # 39;
The couple spent eight months camping next to Tafida. Their & # 39; home & # 39; is a single room with shared facilities in a house cared for by a good cause. Shelina has not been home since February.
& # 39; Most days I am with Tafida at 8 o'clock & # 39; "Until midnight when Mohammed takes over," she says. & # 39; If I can't be there – because of seeing lawyers – the family comes in. We don't want her to ever wake up and feel scared or wonder: & # 39; Where are Mom and Dad? & # 39;
& # 39; This has been a victory for all parents. It shows that the rights of parents are not being taken away. And it recognizes the value of disabled children. Tafida may be severely disabled, but her life is still of value. & # 39;
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