Despite a completely healthy pregnancy, a young first-time mother suffered the shock of her life when she learned that her one-day-old son suffered a stroke.
Jessica Hills, a 23-year-old mother from St Marys, in western Sydney, gave birth to her "happy and healthy baby," Khynan in March.
"When Khynan was born, he was placed on my chest and I immediately knew something was wrong," Hill told Daily Mail Australia.
Despite a completely healthy pregnancy, a young first-time mother suffered the impact of her life when she learned that her son one day suffered a stroke.
His newborn son did not respond, limp and lacked color.
It was not until five days after Mrs. Hill and her partner Shannon discovered the truth: Your child had suffered a stroke.
In spite of & # 39; come good & # 39; After a few minutes on his chest, doctors took precautions and put him in the neonatal intensive care unit to monitor Khynan's labored breathing.
"After they did some tests, he came back that he was fighting an infection and then he was treated with antibiotics," he said.
Later that night, around midnight, I received a call from the NICU to come down directly. Khynan had been transferred to an incubator and told that he had suffered an attack. "
"They started him with some anticonvulsant medication, but he continued to have seizures for about a day and a half until they could control them with medication."
Multiple attacks to his name before he was even a week old, Khynan was the subject of a series of tests and scans, including an MRI, to identify the cause of the seizures and evaluate any possible long-term damage
Multiple attacks to his name before he was even a week old, Khynan was subjected to a series of tests and explorations, including an MRI, to identify the cause of the seizures and evaluate any possible long-term damage.
It was after this test that the young parents learned of Khynan's attack.
I can not even begin to explain how it was that they told me this news. For a moment I thought I was in a really bad nightmare, I just did not feel real.
"It's not something I've ever heard that has happened to a child, let alone a newborn baby, and they've told him that what happened to our son was heartbreaking."
The nightmarish situation worsened when the couple felt abandoned in the dark and doctors could not give them solid answers to some of their most pressing questions.
"They could not tell us what caused it and why this happened and they could not determine exactly when it happened, they just knew it was around the date of birth."
"They told us that Khynan most likely has difficulties with most things, for example, sitting, crawling, walking, talking, seeing, etc."
Jessica Hills, Khynan's mother (pictured) said "for a moment I thought she was in a really bad nightmare" when she found out about her son's condition
"We just would not know how much it would affect him doing these things until he reaches those milestones, so it will be a waiting game."
Just two days after the news, Khynan was released from the hospital, and the family received referrals for the cerebral palsy alliance to begin physiotherapy and with an occupational therapist (OT) for Khynan.
However, Ms. Hill and Shannon did not receive any additional support or guidance on how to deal with the news or what has happened recently.
"With regard to Shannon and me, we were not given help to see someone who talked about the trauma we went through, it was something like the same thing happened, now you're free to go home."
Just two days after the news, Khynan was discharged from the hospital and the family received referrals for the alliance for cerebral palsy.
"We were lucky that we had good support from our family and friends."
While it has been a difficult period in the life of the couple, Khynan is now doing well.
The family still talks about good and bad days, but Mrs. Hill acknowledges that the work of physiotherapy and the treatment of anxiety "are really paying off."
"So far we can see that he has had some difficulties with the use of his arm and hand, but with all the hard work we are doing, we are definitely seeing improvements."
"We know he has a long way to go and he will have to overcome some pretty big obstacles, but I think he will make it even more rewarding when he achieves his goals."
The family still talks about good and bad days, but Mrs. Hill acknowledges that the work of physiotherapy and AT is really paying off.
"He is a very strong child and we are determined to do everything we can for him to live a normal happy life."
Ms. Hill and her family hope that, by sharing Khynan's story, they will be able to raise awareness about a topic that is often not mentioned.
When they learned what Khynan had suffered, they were surprised to learn that strokes could affect someone so young, and noticed that many family and friends shared their surprise.
"The last thing a family needs when they have this is to feel alone, terrified of what the future holds for their son, but unfortunately that was what it was for us and I would not want any other parent to feel the same we have had to feel."
Ms. Hill and her family hope that by sharing Khynan's story they can raise awareness about a problem that often is not expressed