The 39-year-old woman who was born without a vagina had to ‘make’ her own habit of having sex

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A woman born without a vagina has been told how to make her own custom one so she could have a ‘normal’ sex life and ‘claim’ her feminine body.

Ally Hensley, 39, from Berkshire, started diagnosing a rare condition known as Mayer-Rokitansky-Kuster-Hauser syndrome (MRKH) at the age of 16, meaning she was born without a vagina.

MRKH, also known as Mullerian Agenesis, affects about one in 5,000 women worldwide, and people with the condition are usually diagnosed in their late teens when they don’t experience periods.

Speak against Mamamia, the writer, who was born without a uterus, cervix and vagina and post about her condition on her Instagram page @BuienRadarNL, explained: ‘During one of my first medical appointments, it was explained that the length of my vagina was about the length of a fingernail. ‘

My “dimple,” as they usually call it, was extremely underdeveloped. If I wanted to have a ‘normal’ sex life and reclaim my feminine body, I would have to create my own custom made vagina. ‘

Ally Hensley (pictured), 39, from Berkshire, has started diagnosing a rare condition known as Mayer-Rokitansky-Kuster-Hauser syndrome (MRKH), which means she was born without a vagina

Ally Hensley (pictured), 39, from Berkshire, has started diagnosing a rare condition known as Mayer-Rokitansky-Kuster-Hauser syndrome (MRKH), which means she was born without a vagina

Ally (pictured) explained that for nine “traumatic” months – morning and evening – she stuck pink hard tubes into the dimple the size of a fingernail and pushed hard.

Consumed by shame and trauma, as a young woman, Ally (pictured) struggled to come to terms with MRKH and the complexities of this life-changing diagnosis

Consumed by shame and trauma, as a young woman, Ally (pictured) struggled to come to terms with MRKH and the complexities of this life-changing diagnosis

Consumed by shame and trauma, as a young woman, Ally (pictured) struggled to come to terms with MRKH and the complexities of this life-changing diagnosis

“At the time, there were two options – surgery or dilation – and I chose the latter as the less invasive treatment.”

Ally went on to explain that for nine “traumatic” months – morning and evening – she stuck pink hard tubes into the fingernail-sized hole and pushed hard.

She added that the routine would eventually give her a vagina.

WHAT IS MAYER ROKITANSKY KUSTER HAUSER?

Rokitansky syndrome, or MRKH (Mayer Rokitansky Küster Hauser), is a birth defect characterized by the absence of the vagina, uterus, and cervix.

Women suffering from the condition have normally functioning ovaries, so they will experience the normal signs of puberty but will not have periods or be able to conceive.

The external genatalia is completely normal and therefore MRKH is usually not discovered until women are in their teens.

Many women are able to create a vaginal canal using a dilation treatment, which uses cylindrical dilators of different sizes to stretch the muscles.

However, if this fails, surgery is used to stretch the vaginal canal.

After treatment, women can have sexual intercourse and their eggs can be removed and fertilized to be used as a surrogate mother. However, people without ovaries will never be able to have children because they don’t produce eggs.

It affects one in 5,000 live births, according to a 1985 article in the Journal of Reproductive Medicine.

Source: NHS

Even 23 years later, Ally says it’s still something she often thinks about.

“ I’ll never forget the position I had to get into to force a dilator into my body – flat on my back with my feet on the floor and my knees apart, ” she wrote.

‘It still haunts me when I get into that position in yoga. It is unreal that I, as a 39-year-old woman, walk around with a homemade vagina. ‘

But consumed by shame and trauma, Ally struggled as a young woman to cope with MRKH and the complexities of this life-changing diagnosis.

She went on to explain how her genetic pathway hit a ‘pothole’ during the first six to eight weeks of pregnancy – the first time our reproductive organs develop.

But Ally still had hope – adding that not all parts of her absent system had been lost.

With the presence of ovaries, her fired estrogen, which means that no one outside would be sensible because she has breasts, hips, and the external genitalia that you normally see in a woman.

However, she admitted it was a body shape that she was ‘not growing comfortably’.

Ally also called it ‘hugely traumatic’ never to be able to experience it pregnancy or childbirth – and to lose her virginity to ‘pyrex cylinders’.

In a desperate attempt to match her friends, she went on to say how she would do it ‘memorize’ birth control pills, “took a pregnancy test so she knew what it felt like and” had to be drunk to have sex. “

But as her biological clock ticked away, Ally, who admitted to dealing with eating disorders and self-harm, had to decide if she ever wanted to become a mother.

Although she was lucky enough to have a friend offer to become a surrogate, several IVF appointments and blood tests later, Ally came to the difficult decision that it just wasn’t part of her life plan – and that she needed time to recover. ‘

Now Ally is speaking out to raise awareness of the condition and is founder and vice president of it MRKH Australia – a non-profit organization that provides a safe, welcoming and inclusive space for people affected by MRKH.

She further emphasizes how her experiences have helped her learn that while our past helps shape us, they do not ‘define’ us – adding ‘our anatomy does not choose who we can become’.

Rokitansky syndrome, or MRKH (Mayer Rokitansky Küster Hauser), is a birth defect characterized by the absence of the vagina, uterus, and cervix

Rokitansky syndrome, or MRKH (Mayer Rokitansky Küster Hauser), is a birth defect characterized by the absence of the vagina, uterus, and cervix

Rokitansky syndrome, or MRKH (Mayer Rokitansky Küster Hauser), is a birth defect characterized by the absence of the vagina, uterus, and cervix

Ally's genetic pathway (pictured) hit a 'pothole' during the first six to eight weeks of pregnancy - this is the primary time our reproductive organs develop

Ally's genetic pathway (pictured) hit a 'pothole' during the first six to eight weeks of pregnancy - this is the primary time our reproductive organs develop

Ally’s genetic pathway (pictured) hit a ‘pothole’ during the first six to eight weeks of pregnancy – this is the primary time our reproductive organs develop

Ally (pictured) now speaks out to raise awareness of the condition and is founder and vice president of MRKH Australia - a non-profit organization that provides a safe, welcoming and inclusive space for people affected by MRKH

Ally (pictured) now speaks out to raise awareness of the condition and is founder and vice president of MRKH Australia - a non-profit organization that provides a safe, welcoming and inclusive space for people affected by MRKH

Ally (pictured) now speaks out to raise awareness of the condition and is founder and vice president of MRKH Australia – a non-profit organization that provides a safe, welcoming and inclusive space for people affected by MRKH