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Sydney teenage girl with neurological disorder cannot move – except when she’s asleep

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Cruel disorder leaves teen girl completely unable to move…except when she’s ASLEEP

  • Sydney teen Chelsea Speirs was diagnosed with FND
  • She cannot talk, walk or move any part of her body

A teenage girl with big plans for her future is stricken with a rare ailment that leaves her bedridden, unable to speak and only slightly moving her fingers.

Chelsea Speirs, 17, from Sydney’s North Shore, has a condition called functional neurological disorder that has left her immobile.

The debilitating condition occurs when there is a problem between the brain receiving or sending information to the rest of the body.

“She can move her fingers and her hands a little bit,” said Chelsea’s mother, Meredith 9News.

She can also nod very slightly or shake her head – so you can get ‘yes’ or ‘no’ answers from her; otherwise she’ll have to type it into her phone.’

But when she sleeps, Meredith said her daughter “doesn’t stop moving” in her bed all night.

Chelsea Speirs (pictured right with her mother Meredith), 17, has been left bedridden, unable to speak and barely move after being diagnosed with a functional neurological condition

It’s only been a year since Chelsea, who is autistic and has ADHD, was a carefree and healthy teenager going to school and working towards her dream of studying astrophysics.

But her world was turned upside down when she got a gastro bug on June 18 last year.

While the bug wasn’t particularly serious and only lasted about six hours, it was during the recovery period that Chelsea and her parents realized something was wrong.

The teen found it difficult to move her lower body, with her mother revealing that she could only walk “when her legs were locked in a straightened position.”

She was taken to Hornsby Hospital where, after a series of tests, she was diagnosed with a functional neurological disorder.

Doctors initially predicted that she would recover within weeks with physical therapy. But as the weeks went on, Chelsea’s symptoms got worse. ‘

She lost her voice about a month after being diagnosed.

Five months later, her legs became so weak that she needed a wheelchair to get around.

Chelsea was a carefree and healthy teenager who dreamed of studying astrophysics when she was caught with a gastro bug, which led to her developing the neurological disorder

Chelsea was a carefree and healthy teenager who dreamed of studying astrophysics when she was caught with a gastro bug, which led to her developing the neurological disorder

Six months after she was diagnosed, Chelsea's legs became so weak that she needed a wheelchair to get around.  She has since been taken home by her family

Six months after she was diagnosed, Chelsea’s legs became so weak that she needed a wheelchair to get around. She has since been taken home by her family

Her condition worsened further in February when she lost all movement in her body after a physiotherapy session.

She was seen by a number of doctors and specialists over the following months, but did not move again during that time.

Despite everything she’d been through, Chelsea was only able to be brought home by her parents a few weeks ago – just in time to celebrate her birthday.

She needs two caregivers to help her at home, while her parents have installed a laptop with a miniature keyboard so that she can continue her studies.

“She still wants to do astrophysics at university. So I thought, ‘Okay, go for your life and I’ll just support you and do what I can behind the scenes to help you out there.'” Meredith said.

The family struggles with the costs, as Chelsea only gets money for her autism, not her neurological condition.

The National Disability Insurance Agency explained that this is because they do not recognize a functional neurological disorder as a permanent condition.

Chelsea’s family has since set up an online fundraiser to help with her medical bills.

The GoFundMe page for Chelsea can be found here.

Jackyhttps://whatsnew2day.com/
The author of what'snew2day.com is dedicated to keeping you up-to-date on the latest news and information.

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