Home Entertainment Rose Ayling-Ellis admits she is ‘heartbroken’ and ‘frightened’ of the new ‘deaf cure’ as Strictly pal Giovanni Pernice reaches out

Rose Ayling-Ellis admits she is ‘heartbroken’ and ‘frightened’ of the new ‘deaf cure’ as Strictly pal Giovanni Pernice reaches out

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Rose Ayling-Ellis admitted that she is

Rose Ayling-Ellis admitted she is “heartbroken” and “scared” as she discussed the world’s first gene therapy trial for the deaf on Instagram on Saturday.

The Strictly Come Dancing winner revealed she has strong feelings towards the test after an 18-month-old girl who was born deaf can now hear after taking part.

The EastEnders star had support from her former dance partner Giovanni Pernice as she shared a sweet photo of herself as a child alongside several headlines about gene therapy.

She said: ‘Here’s a picture of me as a child. If I had been born a couple of years later, my life could have been very different.

‘Today it was reported that a gene therapy trial has been carried out. He knew it was going to happen, but he didn’t expect it so soon.

Rose Ayling-Ellis admitted she is “heartbroken” and “scared” as she discussed the world’s first gene therapy trial for the deaf on Instagram on Saturday.

The Strictly Come Dancing winner revealed she has strong feelings towards the test after an 18-month-old girl who was born deaf can now hear after taking part.

The Strictly Come Dancing winner revealed she has strong feelings towards the test after an 18-month-old girl who was born deaf can now hear after taking part.

The EastEnders star had support from her former dance partner Giovanni Pernice as she shared a sweet photo of herself as a child alongside several headlines about gene therapy.

The EastEnders star had support from her former dance partner Giovanni Pernice as she shared a sweet photo of herself as a child alongside several headlines about gene therapy.

‘My first reaction was to feel terrified and heartbroken. It feels like the end. Let me explain why.

Rose wondered if she will be the “last generation of deaf” following the success of the new trial.

And he continued: “Imagine a world where everyone is ‘normal’. What will become of our history, our culture, language and identity? Will we be the last generation of deaf and will we end up in some museum?

‘Deaf people have existed throughout human history. Who decides that their lives do not deserve to be integrated into society? Who supposes we want to be ‘fixed’? Where will they draw the line?

The actress expressed concern that inclusion could be “thrown out the window” and insisted she did not need “relief” from being deaf as it has given her many opportunities.

And he added: ‘My life is richer because of it. There are many deaf people doing great things! Why should we tell them they’re broken when, in reality, they’re winning?’

‘To add insult to injury, this was published during Deaf Awareness Week. The week should be about embracing and spreading awareness about our culture. It’s not something I should get over.

‘(Please respect the decision made by the family for their little girl. Like any parent, they are doing what they believe is best for their daughter.

Along with a baby photo, he wrote:

Along with a baby photo, she wrote: “Imagine a world where everyone is ‘normal’. What will become of our history, our culture, language and identity? Will we be the last generation of deaf and will we end up in some museum?”

Rose Ayling Ellis admits she is heartbroken and frightened of the

1715450803 375 Rose Ayling Ellis admits she is heartbroken and frightened of the

The actress expressed concern that the inclusion could be

The actress expressed concern that inclusion could be “thrown out the window” and insisted she did not need “relief” from being deaf as it has given her many opportunities.

In the comments, Rose also added that she believes

In the comments, Rose also added that she believes “hearing people make decisions for deaf people without fully understanding their way of life.”

Rose had support from her former strictly professional dance partner, Giovanni, who shared three red heart emojis in the comments.

Rose had support from her former strictly professional dance partner, Giovanni, who shared three red heart emojis in the comments.

‘This is not a rant directed against them in any way. Rather, it is a rant directed at society that makes us all believe that being deaf will only bring us suffering, when in reality the opposite is true.)’

In the comments, Rose also added that she believes “hearing people make decisions for deaf people without fully understanding their way of life.”

She wrote: ‘I strongly support the right of deaf people to make their own decisions whether they want to or not.

‘However, there is concern when it comes to the fact that 90% of deaf children are born into hearing families. While these families want the best for their child, it is important to consider that the decision made does not ultimately depend on the baby.

«It often happens that hearing people make decisions in favor of deaf people without fully understanding their way of life. This is what worries me.’

Rose had support from her former strictly professional dance partner, Giovanni, who shared three red heart emojis in the comments.

British girl Opal Sandy, 18 months, has regained her hearing after becoming the first person in the world to participate in a groundbreaking gene therapy trial.

She was born completely deaf due to a disease of auditory neuropathy, caused by the interruption of nerve impulses traveling from the inner ear to the brain.

Now, thanks to a gene therapy being tested in the UK and around the world, Opal’s hearing is almost normal and could improve further.

The girl, from Oxfordshire, who has a genetic form of auditory neuropathy, was treated at Addenbrooke’s Hospital, which is part of Cambridge University Hospitals NHS Foundation Trust.

British girl Opal Sandy, 18 months, has regained her hearing after becoming the first person in the world to participate in a groundbreaking gene therapy trial.

British girl Opal Sandy, 18 months, has regained her hearing after becoming the first person in the world to participate in a groundbreaking gene therapy trial.

The little girl was born completely deaf due to auditory neuropathy

The little girl was born completely deaf due to auditory neuropathy

Professor Manohar Bance, ear surgeon at the trust and principal investigator of the trial, said the results were “better than I expected” and may cure patients with this type of deafness.

He said: ‘We have results (from Opal) that are very dramatic, very close to restoring normal hearing. “So we’re hoping it could be a potential cure.”

Auditory neuropathy can be caused by a fault in the OTOF gene, which is responsible for producing a protein called otoferlin. This allows the cells in the ear to communicate with the auditory nerve.

To overcome the defect, ‘new-age’ gene therapy (from biotech company Regeneron) delivers a functional copy of the gene to the ear.

In Opal’s case, she received an infusion containing the functional gene into her right ear during surgery last September.

His parents noticed improvements in his hearing in just four weeks, but the results were particularly impressive 24 weeks later.

Jo Sandy, a 33-year-old high school geography teacher, and her husband James, 33, who works in car manufacturing, said they were “stunned” when they realized Opal could hear without a cochlear implant. .

Opal now loves to bang her cutlery on the table to make noise and likes to play with toy drums, a piano, and wooden blocks.

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