Parents of severely autistic schoolboy, 11, who could not talk claim that he had spoken his first full sentence after “very encouraging” stem cell treatment in Miami
- Danny Bullen was treated last month and should get a second this year
- The next day his mother claims that he asked for “more potatoes.” [crisps] Please’
- The young person needs help to go to the toilet and goes to a specialized school
The parents of an autistic schoolboy claim that he pronounced his first full sentence, just hours after undergoing stem cell therapy in the US.
Danny Bullen, who lives in Tenerife with his parents and is non-verbal, traveled to Miami last month for experimental treatment.
The next day, 11-year-old mother Irma Guanche, 45, claims that Danny asked her ‘dame mas papas, por favor’, which translates as’ give me more potatoes [crisps], please ‘.
Allegedly, Danny has not said any other full sentence since then, but his parents claim that they have been told that it may take several months for them to notice major changes.
Scroll down for video
Danny Bullen (photo), who has non-verbal autism, reportedly said his first complete sentence after undergoing pioneering stem cell therapy in Miami last month. He lives in Tenerife
Danny’s parents claim he said the sentence the day after the treatment, but has not gone much further since. He was shown in a private hospital in December. He underwent a CT scan to find out why he always hit his head and was numbed to stop him from moving around in the machine
Parents were able to pay for their son’s treatment after a fundraising page raised £ 8,600 in two months.
And they are once again calling on Danny’s second therapy attack later this year.
Parents came across the treatment online through support groups and forums from parents.
Proponents claim it “makes all autism symptoms disappear completely.”
Early studies have shown great promise for stem cell therapy as a potential treatment for autism.
Scientists, however, emphasize that it is still in its infancy and more research is needed.
Danny’s father Lee Bullen – a writer and wrote a book about the condition of his son named Beset – said: “Doctors introduced cord blood stem cells with cells from my son’s bone marrow and cord blood cells.
Danny’s mother Irma Guanche (pictured with him and his sister Nadia) claims that he asked her ‘dame mas papas, por favor’, which translates as’ give me more potatoes [crisps]please “
Danny cannot go to the toilet without help and is forced to go to a specialized school
“He received his first treatment in March and the early signs are very encouraging.
‘He is more alert and has already started using a few new basic words and greetings.
“Undergoing stem cell therapy during two or three visits usually produces better results, and that is why we hope to bring Danny to the US at least twice.
“All symptoms related to ASD (autism spectrum disorder) have disappeared completely in many young patients.”
A parent of an autistic child, who preferred to remain nameless, claimed that her daughter had only experienced “modest results” after having undergone stem cell therapy two years ago.
Danny was diagnosed with autism in 2010 just two years old after his development and communication almost stopped overnight.
In addition to being unable to talk, Danny cannot go to the toilet without help and is forced to go to a specialized school in his hometown of Candelaria.
In addition to the fundraising page, the Danny family in Australia organized a ticket event that raised £ 2,150 ($ 2,810), while the charity for children donated Helping Hands in Tenerife £ 860 ($ 1,124).
The Ave Fenix Masonic Lodge in Los Cristianos gave the parents a check of £ 860 and the Blevins Franks Charitable Foundation donated £ 560 ($ 732).
All this enabled Danny to travel to the Art and Science Surgicenter Clinic in Miami for a treatment of £ 11,425 ($ 14,935).
The parents of the younger hope to take him back again this year for a procedure of £ 7,615 ($ 9,954).
To help with the costs, they have a crowdfunding campaign on GoFundMe, where they hope to raise around £ 26,500 ($ 34,646) for two sessions, as well as to cover part of the travel and accommodation costs.
Danny’s father (photo) is a writer and even wrote a book about his struggle to accept the condition of his son named Beset. He described the results of the treatment as “very encouraging”
CAN STEMCEL-THERAPY HELP AUTISTIC PATIENTS?
In general, autism affects patients in two ways.
The first is a reduced blood flow to the brain, resulting in less oxygen to the vital organ and therefore inflammation.
This damages the ‘power plants’ of brain cells, causing the cells to die.
The second problem is that the immune system of autistic patients does not respond like that of a healthy person.
To combat these problems, research increasingly points to stem cell treatment as a way to “reset” the metabolism and immune system of an autistic person while repairing damaged cells or tissues.
A study from April 2017 through Duke university turned out to be promising for stem cell therapy as an autism treatment.
However, the scientists behind the research emphasize that it is still early.
The study consisted of 25 autistic children – from two to five years old – who had an IV infusion of their own cord blood, which their parents stopped at birth.
The results – published in the journal Stem Cells Translational Medicine – revealed that more than two-thirds saw improvements in their speech, ability to socialize and eye contact.
But the study was only intended to prove safety and was not designed to demonstrate efficacy. It also had no placebo group.
Autism affects more than one in 100 people in the UK, according to data from the National Autistic Society.
And in the US, about one in 59 children is diagnosed with autism spectrum disorder, according to the charity Autism Speaks.
The condition influences how people experience the world, as well as their ability to communicate and build relationships.