Two brothers born with the same brain disorder died within one month of each other – one three years old and the other only six hours old.
Charlie and Sharon Corcoran, about twenty from Neasden in London, lost their two sons just 24 days apart last summer.
Charlie, three and Noah, a newborn, both had polymicrogyria, a condition in which the brain does not develop well in the womb.
Mr. Corcoran said he feels that he & # 39; is stunned by life & # 39; after the devastating loss and that the couple does not know whether future children would have the same condition.
Sharon and Charlie Corcoran lost both their sons – Noah, a newborn and Charlie, three – within a month of each other in June and July of last year. In the photo, the family together in the hours before Noah died
Noah died hours after he was born by a caesarean section last June 11, after doctors discovered that she had both polymicrogyria and an underdeveloped heart.
The couple's grief only deepened three weeks later, when their other son, Charlie, died on July 4 after he had lived with the brain disorder.
& # 39; Noah broke our hearts to pieces and Charlie took away what was left & & # 39 ;, said Corcoran, a 29-year-old truck driver originally from County Tyrone in Northern Ireland.
& # 39; Since then we have existed instead of living, we are empty and we feel like different people, we just try to get through it every day.
& # 39; I have the feeling that I am wobbling through life. The hardest part is that we don't have our boys and we should try to live without them. & # 39;
Both Charlie and Noah were born with polymicrogyria, a genetic disorder where the folded structure of the brain is incorrect.
The disorder can be caused by a number of genetic defects, but Mr. and Mrs. Corcoran have not been told which of them carries the gene that caused it.
Mrs. Corcoran (23) said: & # 39; We will never be the same again. When I think "I don't want to be here" I think I have to fight for them.
& # 39; It is very lonely, there are memories of the boys everywhere. Having children again is a difficult prospect to think about. & # 39;
Mr. and Mrs. Corcoran have been tested to find out which of them have a gene that may have caused their sons' brain disease but have not received any useful results
Noah, who died when he was six hours old (depicted as a newborn), had the polymicrogyria brain disorder and an underdeveloped heart
WHAT IS POLYMICROGYRIA?
Polymicrogyria is a genetic disorder that prevents the brain from developing properly.
It causes the brain to develop an abnormally high number of folds and they grow closer to each other than normal.
This can interrupt nerve signals and cause various problems with body and mind.
In milder cases the condition can lead to controllable attacks, while more serious cases can lead to more dangerous attacks, epilepsy, intellectual disabilities and weakness or paralysis.
Experts do not know how often the condition is, because they have so many potential causes that can be registered differently.
The disorder is thought to be caused by various genetic disorders, including Adams-Oliver syndrome and Aicardi syndrome.
Source: US National Library of Medicine
The structural changes that polymicrogyria causes in the brain interfere with the nerves' ability to communicate well and transmit signals.
More serious cases of the incurable condition can cause epilepsy, delayed development, speech and swallowing difficulties, and weakness or paralysis.
Doctors told the couple that Noah would probably not survive the birth and, despite having been through it, he died six hours after he was born.
The destroyed couple returned home to be with Charlie, but he also died two days after his third birthday a few weeks later.
Mr. Corcoran said: & # 39; Sharon had to give birth, knowing that Noah would not make it.
& # 39; Our family brought Charlie in and for six hours we were able to form a family together.
& # 39; It was really hard because the hours went by and we got more and hoped he would survive. I have never cried so many times, it was hard to keep up.
& # 39; When Noah died I held him and he cried out in the last moments before he died.
& # 39; Just before he died, I placed it on Sharon's chest and opened his eyes and looked at Sharon. There was no dry eye in the room.
Charlie, who was three when he died, was also born with polymicrogyria – a condition in which the folds of the brain do not develop well
Charlie, pictured with his parents, needed care and medication 24 hours a day for his entire life due to his illness and had regular attacks.
& # 39; Every time I tried to walk away, I couldn't – it was just too heartbreaking. & # 39;
Mr. and Mrs. Corcoran Since then they have been tested to find out which carries the gene that caused their son's hereditary disorders.
The disorder can be caused by a gene that is supported by one or both, but the tests have not produced conclusive results.
This means that they do not know if they will ever be able to have children without passing on the disease.
Charlie had frequent attacks and required full-time care and medication during his short life and had seven stays in intensive care.
& # 39; We were always told that Charlie would not be able to live a normal life or walk or talk & # 39 ;, said Corcoran.
& # 39; But he brought so much into our lives, he had so much character about him and had a spark that could illuminate a room.
& # 39; Two days after his birthday we went back to the hospital because his breathing had become a struggle.
& # 39; We knew deep inside that it would be his last time. We spent two days in the hospital holding him and playing music for him.
Charlie died only two days after his third birthday. His parents brought him to the hospital when they noticed that he had breathing problems and his father, Charlie, said: "We knew deep down that it would be his last time"
Charlie, who was diagnosed when he was a few weeks old, never expected to learn to walk or talk. But Mr. Corcoran said: & He brought so much into our lives, he had so much character about him and had a spark that could illuminate a room & # 39;
Noah was delivered by caesarean section on 11 June 2018. Doctors did not expect that he would survive the birth – he did but he died only six hours later
The Corcoran family was able to be together for the first and last time a few hours after Noah was born. Mr. Corcoran said: & # 39; It was a fleeting moment, but it is always something we can look back on & # 39;
& # 39; On July 4, we knew how bad he was and we called all our family and friends and told them we weren't sure if he would have much longer left. & # 39;
The couple is now trying to raise money for Northwick Park Hospital in London, which Charlie had to visit regularly.
They already have more than £ 2,300 from a £ 3,000 goal that they hope to contribute to specialized machines to help sick children breathe normally.
Mr. Corcoran added: & I was holding Charlie at those last moments. I told him it was good to go, we didn't want him to suffer more and that he could go with Noah.
& # 39; Just before he died, he made two sounds as if trying to say something, and then took his last breath.
& # 39; We knew he was gone, we were in pieces. The last pictures of us in the hospital room show us together as a real and right family.
& # 39; It was a fleeting moment, but it is always something we can look back on. & # 39;
To donate to their fundraiser visit the GoFundMe page.