Mothers of children with Down have praised the NHS for weakening the language in its counseling with the syndrome.
Parents had destroyed the advice on the website because of the & # 39; endless lists of problems, risks & # 39; s and red flags & # 39 ;. They put pressure on the NHS to change pages.
Campaigners have now thanked the NHS for changing the advice, which would not be reviewed until April.
Caroline White, an outspoken campaigner whose son has Seb, 11, Down & # 39; s and is a model for M&S, said it is now & # 39; carefully written & # 39 ;.
Her original tweet that praised the move was loved by British actress Sally Phillips, whose 15-year-old son has Down & # 39; s.
Mothers of children with syndrome, including actress Sally Phillips (pictured with son Olly, 15), had accused the NHS of pressuring pregnant women to break down children with Down & # 39; s
Caroline White, an outspoken campaigner whose son Seb (pictured together) has Down & # 39; s and is a model for M&S, praised the review on Twitter
The NHS website now contains a bold yellow box with the text: & # 39; Important. It is your choice whether or not to have screening tests done & # 39;
She said to MailOnline: & I and many other members of Down's syndrome community are very happy with the updated information.
& # 39; The words are balanced, impartial, non-judgmental and thoughtfully written. It is so refreshing not to immediately get a list of every "problem" or "challenge" that you might (or probably won't) encounter.
& # 39; A link to real experiences is perfect, and reminds the reader that people with Down syndrome are individuals, shaped by their family and experience, just like everyone else.
& # 39; When my son was born 11 years ago, I was shown a very bleak future of strangers and I saw him as Down's syndrome instead of the beautiful baby he still was. It was very inhuman. & # 39;
In its new guideline, the NHS emphasizes the unique, positive qualities that children with the syndrome form.
She thanked the NHS for removing her & # 39; scaremongering & # 39 ;, & # 39; endless lists of problems & # 39 ;, risk & # 39; s and red flags. The tweet was fun and retweeted by Sally Phillips
It says: & # 39; People with Down syndrome will have a certain learning disability. This means that they have different skills.
& # 39; But like everyone else, people with Down syndrome have their own personality, things they like and dislike, and things that make them who they are. & # 39;
However, prior to the change, the advice pointed to much of the page to reflect the negative health issues associated with Down syndrome.
It warned that heart disease, hearing and vision problems, thyroid disorders and infections, such as pneumonia, are all more common in children with Down.
The advice also told parents that their child can be checked more often by a pediatrician to help them stay in good health.
Another important area that was renewed in the tweak was the part of screening for Down syndrome during pregnancy.
The page now has a bold yellow box with the words: & # 39; Important. It is your choice whether or not to do a screening test. & # 39;
While the guidelines previously said: “If these tests show that your baby has Down syndrome, you and the other parent of your baby will be offered counseling so that you can talk about what this means.
WHAT IS THE SYNDROME OF DOWN?
Down's syndrome is a genetic disorder that usually causes a certain degree of learning disability and certain physical characteristics.
- Sleepiness at birth
- Eyes that slope downwards and outwards
- A small mouth
- A flat back of the head
Screening tests can expose Down syndrome during pregnancy, but are not completely accurate.
It is caused by an extra chromosome in a baby's cell due to a genetic change in the sperm or egg.
The risk increases with the mother's age.
A 20-year-old woman has about one in 1500 chances of having a baby with Down's syndrome.
Women between 40 and 40 have a 100% chance.
There are no indications that women can reduce their risk.
Down syndrome has no cure.
The treatment is aimed at supporting the development of the patient.
People with Down syndrome are more at risk for health complications such as heart conditions, hearing problems, thyroid problems and recurring infections.
Source: NHS Choices
& # 39; You can also get an appointment to meet a doctor or other healthcare professional who works with children with Down's syndrome. & # 39;
Screening for Down's syndrome is offered to future mothers around 11 to 14 weeks.
Although the tests cannot tell for certain whether the baby has the syndrome, they can reveal how likely it is.
Parents can, if they wish, continue testing to ensure that their baby has Down syndrome, which affects around 40,000 people in the UK.
Around 1,000 babies with Down syndrome are born in Great Britain every year. About nine out of ten British women have abortions after an early diagnosis for Down & # 39; s.
Carol Boys, general manager of the Down & # 39; s Syndrome Association, said: & # 39; We were delighted to have worked with NHS Digital in recent months to update their information about Down syndrome.
& # 39; We have done an enormous amount of work to ensure that the new resources are balanced and accurate and use the correct terminology.
& # 39; We are very encouraged by the way NHS Digital has sought and consulted with us and others in the community.
& # 39; They have spoken to people with Down syndrome and their families, and we feel that the new source is the & # 39; recorded experience & # 39; very effectively and will undoubtedly be used properly by anyone looking for good, up-to-date and balanced information.
& # 39; We are also pleased to be named as an organization that can provide additional information, advocacy and support in all stages of life. & # 39;
Since the birth of her son Olly, 15, actress Sally Phillips has drawn attention to Down & # 39; s and released a documentary in 2016 with the name A World Without Down & # 39; s Syndrome?
The Miranda star in tears accused the NHS of pressuring pregnant women to an abortion if they had a baby with Down's syndrome in June.
In an emotional speech, she told hundreds of leading obstetricians in London that & # 39; eugenic thinking & # 39; the NHS has crept in and people with Down & # 39; s have been treated as a & # 39; population of toads to be managed & # 39 ;.
About nine out of ten British women have abortions after being diagnosed with Down, which leads to a certain degree of learning disability and delayed development.
Miss Phillips, 50, who played in Bridget Jones's Diary and the BBC sitcom Miranda, said a simple blood test to detect the condition was gradually introduced by the NHS and had led to an increase in abortions.
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