An inspiring mother told how a cruel Florida woman in the church her baby a & # 39; monster & # 39; named her and led her to leave the United States to Russia in search of a groundbreaking treatment for the large & # 39; Batman mask & # 39; to cure the girl.
Carol Fenner, 36, flew around the world for the 18-month medical procedure that she hopes will help her daughter Luna, who was born with congenital melanocytic nevus, a skin condition that causes abnormally dark spots.
DailyMail.com has exclusively secured access to treatment in Russia, which Fenner believes it will gradually remove the intrusive black birthmark without creating & # 39; Frankenstein scars & # 39; what American doctors had warned her about.
Carol arrived with Luna, seven months, in September and already sees positive results after two treatment sessions, led by Russian surgeon Dr. Pavel Popov in his photodynamic therapy clinic in the southern Russian city of Krasnodar.
The second treatment using a specially targeted & # 39; laser & # 39; treatment tackled the black around Luna & # 39; s eyes.
& # 39; There is no naevus where he did it, & # 39; Carol said proudly. Now I am 100 percent sure that it will work. I am in the right place and in the right country (and with the right doctor). & # 39;
Carol Fenner flew with her seven-month-old daughter Luna (photo) from Florida to Russia in September to take the & # 39; Batman mask & # 39; to have the baby treated. Luna was born with congenital melanocytic nevus, a skin condition that causes abnormally dark spots, usually on the face. Pictured: Luna after a treatment to remove the birthmark around her eyes
The 36-year-old Brazilian native gave DailyMail.com exclusive access to Luna's treatment, which she hopes will remove the birthmark without scars
Carol said that after two treatment sessions, she already sees positive results and said: & # 39; There is no naevus where he did it. Now I am 100 percent sure that it will work. I am in the right place and in the right country, and with the right doctor & # 39;
The treatment is led by the Russian surgeon Dr. Pavel Popov (pictured with Luna) in his clinic in Krasnodar, Russia
Carol and her husband Tiaga Tavares, 32, had tried everything to find affordable treatment in the United States, but were told it would cost almost $ 500,000 – an unaffordable amount – and not be covered by insurance.
In addition to the extraordinary costs, the procedure would leave permanent scars on Luna's face.
Carol, who comes from Brazil and moves to Florida with a green card where she marries her second husband after a childless first marriage, said that Luna was her & # 39; wonder & # 39; baby because of her struggle to conceive.
& # 39; I went to Boston, Chicago and New York to find an answer for her, & # 39; said Carol.
& # 39; I wasn't really sure about surgery, but I wanted to find the best doctor. & # 39;
But a heartless comment from a mother in the church in Pompano Beach, Florida, led Carol to her decision to seek emergency medical help for Luna.
& # 39; We went to church and the woman next to us told her daughter not to look at Luna (because) she is a monster, & # 39; she said. & # 39; That day I decided that I would continue with the operations. & # 39;
Carol said during her hunt for a medical solution, Dr. Popov called her and said: & # 39; We started talking about Luna. He saw her on the internet somehow. & # 39;
Dr. Popov showed her results from his former patients and Carol considered the advantages and disadvantages of staying in the US or moving to Russia for a long period of time.
Carol said she spoke with her husband Tiaga and her family to make a choice between & # 39; one and a half years of procedures in Russia, against four years of operations, cutting all over her face, in the US.
The American treatment could have meant up to 80 surgeries and doctors would also have put in balloons to extend Luna's skin – which is & # 39; so aggressive & # 39; said Carol.
Carol and her husband Tiaga Tavares, 32, had tried everything to find affordable treatment in the United States, but they were told it would cost almost $ 500,000 – an unaffordable amount – and not be covered by insurance
The American treatment could have meant up to 80 surgeries and doctors would also insert balloons to expand Luna's skin – which & # 39; so aggressively & # 39; said Carol
WHAT IS A CONGENITAL MELANOCYTIC NAEVUS?
About one percent of babies are born with a CMN. However, they are often much smaller. In some cases, they can be hairy.
CMN & # 39; s are sometimes & # 39; brown birthmarks & # 39; mentioned. They grow larger as children get older.
They usually do not cause complications, but they can itch. There is a small risk of melanoma, people with larger CMN & # 39; s thought to be at highest risk – but it is still low.
Dr. Adil Sheraz, consultant dermatologist and spokesperson for the British Skin Foundation, told MailOnline: & The word melanocytic refers to the existence of melanocytes – these are cells that produce pigment or color.
& # 39; A nevus is another word for a mole. A mole that is present from birth is known as a congenital melanocytic nevus (or birthmark). & # 39;
The treatment is usually surgery to remove the stain.
Full-thickness grafts may be needed for large growths.
If surgery is not possible due to the size, location or thickness of the spot, laser therapy can help to reduce pigmentation and make it less hairy.
Dermabrasion can also be used. This means that the skin pops up again, so that it grows back smoother.
Carol said: & # 39; I decided mainly to come (to Russia) because I was comparing the procedures here and there.
& # 39; In the United States, the so-called Frankenstein scars remain on the face after a few years of operation.
& # 39; I didn't want to do that to Luna.
& # 39; The doctor told me it was something like laser, but actually not a laser, with fewer marks possible.
& # 39; I decided to give it a chance. & # 39;
Carol said she would travel back to the US before Christmas, but then return to Russia.
She admitted that her husband's divorce was painful and said, "He is so sad about this situation." He cries every day. & # 39;
Tiaga, who works as a construction worker, said he is afraid that his daughter & # 39; will forget me & # 39 ;.
Carol added: & # 39; I'm trying to be strong for our family, but I'm so worried about him. & # 39;
Dr. Popov is a cancer specialist who has been working in photodynamic therapy for more than 20 years.
Luna is cancer-free, but the technique can also be used for patients with her condition, known as melanocytic nevus.
He said: & # 39; I have been working in photodynamic therapy for over 20 years.
& # 39; It is an innovative way to treat cancer diseases with the help of laser radiation.
& # 39; The technology itself includes administering photosensitizer to the patient's body.
& # 39; This substance is a target for laser radiation and cancer cells die in interaction between this substance and laser radiation.
& # 39; Photodynamic therapy can be used in different modes and can be used to treat a wide range of diseases / conditions, including giant melanocytic nevus. & # 39;
Dr. Popov took the initiative to contact Carol after seeing a story about Luna in his news feed.
Carol said she would travel back to the US before Christmas, but then return to Russia. She admitted that her husband's divorce was painful and said, "He is so sad about this situation." He cries every day & # 39;
Tiaga, who works as a construction worker, said he is afraid that his daughter & # 39; will forget me & # 39 ;. Carol added: & # 39; I'm trying to be strong for our family, but I'm so worried about him & # 39;
& # 39; She has this very giant melanocytic nevus that spreads over most of her face, including eyelids, & # 39; he said.
& # 39; It is a functionally important zone. We contacted her mother.
Keek She looked at the results of our work, was impressed by them and arrived for treatment.
& # 39; We have already completed two treatment phases. Part of the girl's forehead and eyelash area has been treated.
& # 39; Everything is going as planned, she is healing well and feeling good too.
& # 39; She received neither painkillers (painkillers) nor antibiotics in the post-operative period. & # 39;
He promised: & # 39; We expect to get a good cosmetic result and get rid of her illness completely. & # 39;
After stories about the treatment of Luna, Dr. Popov had a flurry of questions from people with similar conditions in Western countries.
The medic said the traditional way to treat the condition – used in the United States – is to place & # 39; silicone expanders under the skin that slowly fill with fluid and expand the skin with nevus to be cut after the Expanded skin is used to cover the cutting area. & # 39;
But Dr. technology. Popov is non-invasive, there is no blood and the tissues heal naturally.
The technology & # 39; provides a good functional and cosmetic result & # 39 ;, he said.
Carol said she expected the Russian people & # 39; rather cold & # 39; were, but found instead that they were & # 39; awesome & # 39; were in how she and Luna were welcomed
Luna is cancer-free, but the technique can also be used for patients with her condition, known as melanocytic nevus
Yet the financial costs are high with each of eight treatments that cost $ 25,000. Carol used GoFundMe to raise the money – at least $ 140,000 – will be required.
She is still confronted with the cruelest comments about her baby – including on Instagram used to collect the money.
Someone recently told her on Instagram that Luna & # 39; is terrible and you should kill her & # 39 ;, she said.
& # 39; So Instagram was good and bad for me at the same time. & # 39;
& # 39; One day I feel great and the other day I cried nonstop. & # 39;
But Carol is determined to cure Luna because of the threat of cancer if the mark is not removed – and the bullying that her daughter would undergo.
She expected Russian people & # 39; rather cold & # 39; would be, but instead thought they were & # 39; awesome & # 39; were in how she and Luna were welcomed.
She has an apartment and has recently cooked for some Russian visitors from the clinic – Brazilian stroganoff.
& # 39; I have not tried Russian food yet, & # 39; she explained.
& # 39; Next Monday I'm going to try borsch and pelmeni.
& # 39; I didn't have time – I'm not going out, Luna can't get bacteria because of her operations.
& # 39; I don't go to restaurants. I make food at home, some Brazilian food. & # 39;
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