The mother of a 13-year-old seriously epileptic boy who says medicinal cannabis has changed his life has revealed that her fresh torment after his last prescription was rejected.
Billy Caldwell and his mother, Charlotte, from Castlederg, County Tyrone, spent the winter in & # 39; exile & # 39; in Canada, and only returned to the UK after it was agreed that Billy could be prescribed the drugs that seized him most of last year.
However, today appeared this morning this morning, Charlotte said the family had to endure new misery because his supply will be exhausted tomorrow, with little hope for a new recipe.
When she made the decision & # 39; orchestrated cruelty & # 39; to her son, who was in the ITV studio's but not in the air, Billy said that Billy had helped change the law and, ironically, he has now been banned from it.
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Billy Caldwell & # 39; s mother Charlotte appeared on This Morning today to show that her son's latest offering of medical cannabis, which dramatically reduces his seizures, runs out tomorrow and a new prescription is denied to the family
Billy, 13, suggested a backstage during the This Morning show; his mother Charlotte said her son was transformed by medicinal cannabis from & # 39; exhausted & # 39; to be a & # 39; great, funny, little boy & # 39;
Charlotte told Holly Willoughby and Philip Schofield that while Northern Irish health officials were & # 39; silent & # 39; upon their last request for a prescription
In the words of Holly Willoughby and Philip Schofield and along with physician Ranj Singh, Charlotte said: & Where we are today, this is absolutely orchestrated cruelty and discrimination against my little boy. & # 39;
She described the transformation in her son since he first took the drug and said: & # 39; Billy has evolved from a little boy who was completely and completely exhausted – he had a huge amount of seizures and was prescribed a cocktail of medication to a lively, clear, wonderful, funny little boy who now achieves so much in his life. & # 39;
The family was forced to leave Britain in November because they could not find a doctor willing to prescribe medicinal cannabis to Billy – even though it is now legal.
As Dr. Ranj explained, the problem lies with the psychoactive element THC: & Cannabis consists of two important active ingredients CBD and THC. There is fairly good evidence with CBD that it can reduce seizures in people with severe epilepsy – by as much as 50 percent. & # 39;
After he started using the medicinal cannabis with the psychoactive element THC, Billy was largely fit-free for 2018, but he had to travel to Canada, his mother says, after being denied a new prescription in November 2018.
Charlotte Caldwell told Holly and Phil that Aurora, the medical drug company, will give him more drugs, but since the news broke out, the company has been approached by multiple families asking for similar gifts
Dr. Ranj explained the problems with prescribing medicinal cannabis in the UK, saying GPs are waiting for new NICE guidelines in October and until that time interim guidelines, which do not help families like Billy & # 39; s, will be followed
& # 39; THC, there is not very good evidence with severe epilepsy and there is concern that it can make epilepsy worse, and there are also concerns about the effect on the developing brain. & # 39;
Although new guidelines for prescriptions are currently being drawn up by the National Institute for Health and Care Excellence (NICE), they are not due until October and GPs are currently following interim guidelines, suggesting that prescriptions can only be made if a doctor has a clinical case makes it.
The health ministry told the show that it would not comment on individual cases.
Since taking the drug, Billy who suffers from severe epilepsy, is almost fit-free
In February, Charlotte and Billy landed at Heathrow Airport and picked up the cannabis from a pharmacy in Surrey after being prescribed by a doctor told by the Department of Health that writing a prescription for the drug was good .
At the moment, an overjoyed one Mrs. Caldwell told The Times: & # 39; I searched the UK and Ireland for doctors who would postulate this. I have lost the number of emails I have sent and phone calls I have made. I would be there in Canada (sending messages at three or four in the morning because of the time difference.
& # 39; I'm a little bit emotional, it feels like I'm coming out of jail. & # 39;
Billy Caldwell and his mother, Charlotte, from Castlederg, Co Tyrone, returned yesterday from three months in & # 39; exile & # 39; in Canada.
Since using the drug, Billy who suffers from severe epilepsy is almost fit-free, but now relies on the company that makes his medication, Aurora, to give it to him, something Charlotte says isn't & # 39; durable or suitable & # 39 ;.
Billy was given one NHS prescription for cannabis in 2017 – but the Ministry of the Interior no longer forbade his doctor to give him back at the home office.
Last summer, when the family tried to get a fresh supply of medicinal cannabis from Canada where it is legal – it was seized by customs.
Billy was then put in the spotlight by his mother who appealed to the law to change the law to get medicinal cannabis prescribed by law – and said that Billy could die without the law.
Four days later she saw him on the way to Chelsea and Westminster Hospital in London.
A tearing Charlotte, 50, spoke outside of the hospital about her & # 39; beautiful, sweet, innocent boy & # 39; who suffered from & # 39; life-threatening & # 39; attacks and earned this & # 39; heartless treatment & # 39; not.
Within a few hours, the Ministry of the Interior released part of the confiscated drugs that contained two cannabis-derived substances, the legal cannabidiol (CBD) and prohibited tetrahydrocannabinol (THC), the psychoactive substance associated with the & # 39; high & # 39; given by the medication.
They gave doctors a 20-day license to administer one of the seven bottles of the medicine that Charlotte had brought from Canada.
Then, clearly forced to behave, Home Secretary Sajid Javid told the House of Commons that it was & # 39; time to plan cannabis & # 39; for medicinal use.
Mr Javid's review has led to a change in the law.
Patient groups say that the reform has had little effect and could be negative.
The patient group's comments led to new guidance from professional bodies that discouraged doctors from prescribing cannabis.
One agency, the British Pediatric Neurology Association, received letters from more than 30 parents – who had accused it of & # 39; ignoring the law change & # 39; and causing & # 39; barriers and threats to those seeking treatment & # 39 ;.
Charlotte said there were & # 39; connections for the first time & # 39; between the medical cannabis experts in Canada and doctors and the UK.
She said: & # 39; It was a huge step forward for us in the UK – and not just Billy & # 39 ;.
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