Footy star Gary Rohan and his wife Amie have turned to the & # 39; most bittersweet day of their lives & # 39; opened – 12 months after the loss of one of their twin girls hours after birth.
Amie, 25, was 12 weeks pregnant when she discovered that one of her babies had anencephaly – a congenital disorder where a large part of the baby's brain cannot develop – and would not survive.
The mother's birth by the mother on April 12, 2018 was marked by both joy and pain after the new parents were forced to say goodbye to Bella & Sister Willow Nevaeh only five hours after she was born.
A year later, the couple celebrated the first birthday of baby Bella, in memory of the short life of their deceased daughter.
& # 39; Because of Willow, we value every second of life. She was a relief for every minute that she was the most beautiful wispy willow here, blowing in the wind for the most precious time, & Amie said in a heartbreaking interview with New Idea.
Dad Gary reminded his baby girl as a & # 39; little fighter & # 39; who taught them to face & face all challenges & # 39 ;.
A year later: Amie and Gary Rohan celebrated the first birthday of daughter Bella, in memory of the short life of their deceased daughter Willow
The couple gave birth to twins in April 2018, but they knew that the moment would be bittersweet – learn that Willow would not survive long after he was born
Amie spoke about the painful moment when doctors informed prospective parents that their child would not survive.
After discovering that her daughter had been diagnosed, Amie clung to the hope that they still had options for their baby.
& # 39; At that moment the doctor looked at me and said: & # 39; I'm so sorry, but these babies are incompatible with life and gave me a box of tissues, & # 39; said Amie.
& # 39; Gary and I both sat and cried there. & # 39;
Despite the grim diagnosis, she made the courageous decision to transport Willow in the long run to increase her chances of survival.
Shortly after the twins were born via c-section, Bella was transferred to the NICU while the parents spent their first and last moments with their newborn baby girl.
The couple said the experience made them stronger after being forced to face one of the greatest challenges of life.
And despite their grief and broken heart, the two now cherish their task of being parents of & # 39; dream boat baby & # 39; Bella, they said.
Amie revealed that the couple is open to more children, but needs more time to heal from the tragedy.
The heartbreaking interview comes days after Amie posted a candid message about making an & # 39; emotional rollercoaster & # 39; ride with her daughter Bella.
She posted on Instagram on Tuesday, about a year after delivery, and said: & # 39; this week turns out to be a lot harder than I thought it would be & # 39 ;.
Mrs. Rohan posted a photo of her husband and daughter Bella with the caption: & # 39; I am always grateful to have this wonderful person in this crazy adventure that we call life & # 39;
The couple will leave the hospital with their daughter Bella in 2018
Amie posted a photo of her husband and her daughter Bella on Instagram with the caption: & # 39; Thankful for always having this wonderful person side by side on this crazy adventure that we call life.
& # 39; This was last night, Bella got upset like she did most nights before she settled in her deep sleep and I couldn't control myself. I cried with her, I couldn't see her so angry. It has never happened before, I was so overwhelmed by emotion. & # 39;
& # 39; This week turns out to be a lot harder than I thought it was, I am so open and honest all the time, so I thought it would be alright. Apparently not, I am an emotional rollercoaster here that is certain. & # 39;
Willow was diagnosed with anencephaly while she was still in the womb – a condition that means she would be born without parts of her brain and skull.
She survived five hours – a window from the time her parents said they would cherish & # 39; forever.
When she opened up to Harper's Bazaar magazine in October last year, Amie said she and Gary, 26, had made the decision to wear both babies in the long term.
& # 39; We sat down and said, "This journey is written for us, let's continue."
& # 39; We had about five hours with Willow before she succeeded. In those five hours I learned so much about life and how valuable it is, & she said the publication.
& # 39; Although her time here was so fleeting, she was a very wonderful girl. & # 39;
& # 39; Amie, Bella and I popped up with Willow every second and made as many lasting memories as we could all together & # 39 ;, Gary posted on Instagram the day after birth.
Amie & # 39; s most recent post on Instagram about the struggle of the young family has received overwhelming support almost 5,000 times in about four hours.
Aimie visiting her husband Gary at work for the Sydney Swans in 2018 with their daughter Bella