Disabled 2ft 10in woman with brittle bone disease who met her wife online, reveals that she wants to show singletons who ‘feel undesirable’ that ‘love is possible’
- Haley Lapkin, who is 2ft 10in tall and has brittle bone disease, met her wife online
- The couple started chatting in 2009 and met for the first time in 2010
- They now run a YouTube channel about an “interconnected” relationship
- Haley says she wants to show other disabled people that they are desirable
A woman with a brittle bone disease who has met her wife online reveals that she wants to give hope to singletons that ‘feel undesirable’.
Haley Lapkin, 37, who is 2ft in length, has type III osteogenesis imperfecta, a severe form of brittle bone disease that has caused 200 fractures during her lifetime.
Haley, from Oregon, searched for love and signed to a dating site where she met her future wife, Angie, 34.
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Haley Lapkin, who has a brittle bone disease, met her wife Angie online and wants to offer hope to singletons who “feel undesirable.” Pictured, Angie, left and Hayley at home in Oregon
The couple now runs a YouTube channel, Angie and Hayley Present, where they talk about a queer “fit” relationship, a term used to describe a couple where one person has a disability and the other doesn’t.
Hayley said, “It’s to show other people in similar situations that don’t think they’re worthy of love or that they’ll find love, that love is possible.”
Angie added: “Love comes in all forms; our channel is a friendly place where people can come. The point of becoming aware for us is just to enrich people’s lives a little more. “
The couple met online in 2009 and spent a year before they took the step to meet each other in person.
The couple met online in 2009 and spent a year before they took the step to meet each other in person. They became engaged shortly thereafter. Shared a kiss in Oregon in the photo at home
The couple now runs a YouTube channel, Angie and Hayley Present, where they talk about a queer “fit” relationship, a term used to describe a couple where one person has a disability and the other doesn’t. In the photo the couple working on the laptop
What is the Osteogenesis Imperfecta Disorder?
Osteogenesis Imperfecta, also known as OI or the disease of brittle bones, is a lifelong genetic disorder that is very rare and occurs in 1 in 20,000 to 1 in 50,000 births.
The condition disrupts the body’s ability to form strong connective tissue and grow new bone tissue.
It occurs due to a lack of high-quality collagen, the protein that forms the framework for the bones.
As a result, the bones and other functions, including the teeth and cartilage, may lack flexibility and strength, making them more susceptible to fractures.
Collagen also appears in the sclera, the white part of the eye and a lack of protein can give people with OI a blue tint in their eyes.
Children with OI can also get severe scoliosis, which is a backbone curve and can have hearing and heart problems.
Although drugs are used to try and make the bones stronger, there is no treatment to alleviate the condition itself.
“Angie was actually the one who gave me the hand, that was unexpected because I’m usually the pursuer,” Hayley said.
Their connection was immediate and it didn’t take long for the couple to be engaged, with Angie coming to live with Hayley.
Haley continued: ‘Our first visit together, it just felt like a connection. When Angie came to live with me for the first time, I could not wait until she was here, I was nervous but above all excited. “
The couple have grown from strength to strength in the 11 years since their first conversation. However, they both admit to being afraid of the future.
Angie and Hayley run a YouTube channel to create a “safe space” for others. In the photo, the couple are working together at home on a clip in Oregon
Haley, pictured with her father Larry, has type III osteogenesis imperfecta, a serious form of brittle bone disease that has caused 200 fractures during her lifetime
Hayley said, “I’m worried, will she get sick one day?” Is she going to leave? ”
But Angie insists that her wife’s disability is not a problem.
“Because I had an interfunctional relationship, I never thought about it when I first met Haley,” she said. “I love her for her and she loves me for me.”
Hayley urged other singletons who are concerned about finding love to place themselves there.
She added, “I would just say to other handicapped queer women,” you may not feel desirable, but if you know you are worthy to love, it will turn out to others and that will attract someone. “I know it will because it worked for me.
“Finding love is my favorite thing I have done in my life, it is the best thing I have experienced.”
With 2,000 followers and more, the couple have their own YouTube vlog today