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Jude Peters was diagnosed with RCDP, a rare developmental disorder of the brain, two days old
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He was never expected to reach the age of two weeks.

But five years later, Jude Peters, wonderful doctors, flourish as he reaches milestone after milestone.

His parents Hannah and Sully were instructed to prepare for the worst of the pregnancy.

Their obstetrician in Charlotte, North Carolina, said scans suggested that their baby would have some form of skeletal dysplasia, but it was not clear to what extent.

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Two days after he was born, a rare brain developmental disorder, causing dwarfism, rhizomelic chondrodysplasia punctata (RCDP), was diagnosed.

Sixty percent of the & # 39; Rhizo children & # 39; will not get their first birthday and another 30 percent will not get two. The condition affects the development of their lungs, brain and skeleton so severely that it is often fatal. Those who survive cannot eat, talk and walk.

Doctors said they would only be with him for a few weeks at best, but they would try to operate by inserting a feeding hose.

Jude Peters was diagnosed with RCDP, a rare developmental disorder of the brain, two days old

Jude Peters was diagnosed with RCDP, a rare developmental disorder of the brain, two days old

Doctors told Sully and Hannah (photo) to prepare for the worst; that he would not live for two weeks
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Doctors told Sully and Hannah (photo) to prepare for the worst; that he would not live for two weeks

Doctors told Sully and Hannah (photo) to prepare for the worst; that he would not live for two weeks

After several operations, Jude was stable and could be treated at home

After several operations, Jude was stable and could be treated at home

After several operations, Jude was stable and could be treated at home

Jude celebrated his fifth birthday in the hospital since he recently contracted an infection

Jude celebrated his fifth birthday in the hospital since he recently contracted an infection

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Jude celebrated his fifth birthday in the hospital since he recently contracted an infection

To their surprise, he reached one, then two, then three, four, and this year, on April 17, he turned five.

He spent the day in the hospital, surrounded by balloons and toys, since he had recently contracted an infection.

But today, on the national RCDP day, his parents celebrate how far he has come.

& # 39; He has braved the effort and has continued to be a fighter. Our miracle boy, & Hannah said.

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& # 39; Regardless of all the medical challenges he faces and still faces, Judas is filled with tremendous joy. He loves meeting new people every day and smiles. & # 39;

Jude is wheelchair-bound and his joints contract because of his spinal stenosis, which means that he needs weekly therapy that he loves and is looking forward to.

He will inevitably have to deal with more surgeries and they will always try to learn new medicines every year in a RCDP medical conference in Alabama, where they can meet other families and medical experts.

It is a long-term undertaking to get his treatment plan in place.

Jude is wheelchair-bound and his joints are contracted due to his spinal stenosis, which means that he needs weekly therapy that he loves and looks forward to

Jude is wheelchair-bound and his joints are contracted due to his spinal stenosis, which means that he needs weekly therapy that he loves and looks forward to

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Jude is wheelchair-bound and his joints are contracted due to his spinal stenosis, which means that he needs weekly therapy that he loves and looks forward to

He will inevitably have to deal with more surgeries and they will always try to learn new medicines every year in a RCDP medical conference in Alabama, where they can meet other families and medical experts.

He will inevitably have to deal with more surgeries and they will always try to learn new medicines every year in a RCDP medical conference in Alabama, where they can meet other families and medical experts.

He will inevitably have to deal with more surgeries and they will always try to learn new medicines every year in a RCDP medical conference in Alabama, where they can meet other families and medical experts.

From the moment Hannah found out she was having a & # 39; risky pregnancy & # 39; She started blogging about it, not sure what it meant but sharing her discoveries publicly as she went on

From the moment Hannah found out she was having a & # 39; risky pregnancy & # 39; She started blogging about it, not sure what it meant but sharing her discoveries publicly as she went on

From the moment Hannah found out she was having a & # 39; risky pregnancy & # 39; She started blogging about it, not sure what it meant but sharing her discoveries publicly as she went on

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When he was first diagnosed, few doctors in his area knew anything about his rare condition.

Hannah and Sully traveled to Wilmington, Delaware, to take Jude to the AI ​​DuPont Children's & Hospital, which has a specialized department for RCDP children.

There they received the official diagnosis, and they could start etching their plans.

& # 39; Once he was diagnosed, we posted on the Little People of America Facebook page if someone had heard of this condition. Pretty soon we had families who had children with this diagnosis who contacted, & Hannah said.

& # 39; We were completely broken when Jude was diagnosed.

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& # 39; The hardest thing to deal with was hearing the life of RCDP children, and also knowing that Jude could never walk, talk, or eat.

& # 39; It is heartbreaking for every parent. The past five years have had their ups and downs.

& # 39; However, we are standing together with hope and faith and Judas has come that far. & # 39;

From the moment Hannah discovered that she had a & # 39; risky pregnancy & # 39; She started blogging about it, not sure what it meant, but sharing her discoveries in public as she went on.

Hannah said the hardest part to deal with was hearing about the life of RCDP children, and also knowing that Jude could never walk, talk or eat

Hannah said the hardest part to deal with was hearing about the life of RCDP children, and also knowing that Jude could never walk, talk or eat

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Hannah said the hardest part to deal with was hearing about the life of RCDP children, and also knowing that Jude could never walk, talk or eat

The past five years have had their ups and downs

The past five years have had their ups and downs

The past five years have had their ups and downs

& # 39; Awareness is very important for children with rare diseases and we are working hard to raise awareness for Jude and his Rhizo brothers and sisters, & # 39; Hannah said.

& # 39; We often hear that the story of Jude has inspired people and has given them joy and given them hope in their own situation. We feel blessed that Jude & # 39; s story has had such a positive impact. Our hope in sharing our story is that everyone can have joy like Judas. & # 39;

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As for Jude, he is better than any doctor predicted. He is constantly giggling and loves to dance.

& # 39; We generally have joy. Jude has learned to communicate and show us love in his own special and beautiful way.

Other children are curious but are very attracted to Jude because of his big smile and joyful attitude. They are surprised that he is so small for a five year old

Other children are curious but are very attracted to Jude because of his big smile and joyful attitude. They are surprised that he is so small for a five year old

Other children are curious but are very attracted to Jude because of his big smile and joyful attitude. They are surprised that he is so small for a five year old

& # 39; Jude is a much-loved little boy; we are overwhelmed by the love, prayers and support of our friends, family, local press, community and online followers that we call Jude & # 39; s Tribe.

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& # 39; We hope that Jude will continue to live a happy life. Because of his compromised respiratory system, we must be very careful with Jude because he easily catches viruses. We work hard to protect him.

& # 39; Other children are curious but are very attracted to Jude because of his big smile and joyful attitude. They are surprised that he is so small for a five year old.

& # 39; There is always hope. Live one day at a time. Never take anything for granted. Always find joy in everything.

& # 39; Jude & # 39; s favorite thing is dancing. Always take the time to live in the moment and make time to dance. Never give up. & # 39;

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