Celine Dion has shared her deeply personal and emotional journey with stiff person syndrome (SPS) in an exclusive interview with Sunrise.
The 56-year-old singer revealed that her sons Nelson, Eddy and Rene-Charles were worried that she was going to die in a new promotional video for the long-awaited interview.
Diagnosed almost two years ago, Dion’s struggle with this rare and debilitating neurological disorder has been a closely guarded secret until now.
In a preview, Celine spoke with Sunrise correspondent Mylee Hogan about the profound impact SPS has had on her life and family.
“I don’t have my mom, I don’t have my dad,” Dion said, her voice shaking with emotion.
Celine Dion has shared her deeply personal and emotional journey with stiff person syndrome (SPS) in an exclusive interview with Sunrise.
The 56-year-old singer revealed that her sons Nelson, Eddy and Rene-Charles were worried that she was going to die in a new promotional video for the long-awaited interview.
‘My children are afraid because they lost their father and they wonder if I am going to die. I don’t want to die, I don’t want to lie.’
The singer revealed that her health problems began with mysterious symptoms that left her and her children in a state of constant worry.
“I was scared,” he admitted. ‘It can be life-threatening. What is going to happen?’
Dion was officially diagnosed with the degenerative disease in December 2022, a revelation that has undoubtedly transformed her life and career.
Despite the daunting challenges, Dion also spoke about the support she received from friends, including Australian music legend John Farnham.
“I will never forget the gift he gave me,” he said.
The first trailer for Celine Dion’s new documentary I Am: Celine Dion was released Thursday morning, offering a harrowing look at the singer’s brutal battle with stiff-person syndrome.
As the music star, who recently attended a Rolling Stones concert, speaks in the trailer, another voice is heard repeating Celine’s name over and over as a 911 operator asks, “What’s your emergency? “
It was unclear why 911 was called, but it was likely during Dion’s struggle with stiff-person syndrome.
“I don’t have my mom, I don’t have my dad,” Dion said, her voice shaking with emotion. ‘My children are afraid because they lost their father and they wonder if I am going to die. I don’t want to die, I don’t want to lie’
Stiff person syndrome (SPS), also known as stiff man syndrome, is a rare neurological disorder that causes progressive muscle stiffness and spasms.
Spasms may be painful, come and go, and may worsen over time. Stiffness usually affects the muscles of the torso, but it can also affect the arms and legs.
The trailer gives viewers just a sneak peek of the upcoming documentary.
In it, the Canadian admits that she was reluctant to share too much about her recent fights, however, she reveals how limited she is during her training.
Celine’s children can be seen loyally supporting her in a new trailer for her documentary, which premieres on Amazon Prime Video on June 21.
Despite the difficult times, it seems that her children are with her as the documentary shares touching glimpses of the times she spent at home with her three children.