Brain damaged Tafida Raqeeb flies with family to Italy for treatment after winning the High Court battle
A child with brain damage flew to Italy for treatment after winning a controversial lawsuit against NHS bosses who wished to turn her life support off.
Tafida Raqeeb, five, was taken from the Royal London Hospital in East London to Biggin Hill Airport, where she was taken to Genoa with her mother and four doctors.
Shelina Begum, 38, watched her daughter board a Learjet in a private hangar before she sat down behind her for the 4:30 PM flight.
A child with brain damage went to treatment in Italy after winning a controversial lawsuit against NHS bosses who wished to switch off her life support. Pictured: Tafida Raqeeb gets out of flight at Genoa airport
Raqeeb arrives at Genoa airport in Italy before being transported to the city's Gaslini Children's Hospital
Sheliina Begum is greeted by Deputy Mayor Francesca Fassio after the plane landed on Tuesday evening
Paramedics are depicted as they drive Tafida in the back of an ambulance at Genoa airport
Father Mohammed Raqeeb watches while his daughter Tafida arrives at Genoa airport on Tuesday evening
Tafida Raqeeb was taken from the Royal London Hospital in East London to Biggin Hill Airport (photo, her plane departed) where she was put on the plane with her mother and four doctors
According to her parents Shelina Begum and Mohammed Raqeeb, the five-year-old (photo) is flown to the Gaslini Children's Hospital in Genoa, Italy.
Shelina Begum, 38, (pictured earlier today at a balloon release at Royal London Hospital) watched as her daughter boarded a Learjet in a private hangar before sitting down behind her for the 4.30 pm flight.
Doctors watched over Tafida – who was breathing through a ventilator but had her eyes open – during the three-hour trip to Gaslini Children's Hospital, in Genoa
Man Mohammed Raqeeb, 45, (pictured today) was already in Italy after he had flown for his daughter
Doctors watched over Tafida – who breathed through a ventilator but sometimes had her eyes open – during the three-hour trip to the Gaslini Children's Hospital in Genoa.
Mrs. Begum from Plaistow, East London, told it Such a: & # 39; She is really stable. She's awake now. But it was a tough morning. & # 39;
Man Mohammed Raqeeb, 45, who was already in Italy, added: & # 39; This trip to Italy has given us hope. I hope Tafida will have the best life we can give her. & # 39;
Tafida, an externally healthy girl who had just started school, was damaged by the left hemisphere in February when a blood vessel burst in her brain.
During the lawsuit, the couple argued against specialists who suggested that further treatment would be useless because their daughter had permanent brain damage and was in a minimally conscious state.
The parents of Tafida thought that life support treatment should be continued and asked their daughter to move to a hospital of their choice.
Mr. Justice MacDonald judged it was right that difficult decisions should be taken by a parent in the exercise of their parental responsibility.
Because Tafida did not suffer, it was vital for him to & # 39; the holiness of life & # 39; to consider.
Tafida & # 39; s (photo, before she was ill) parents thought life support treatment should go ahead and asked their daughter to move to a hospital of their choice
Tafida (photo), an externally healthy, happy girl who had just started school, was damaged by the left hemisphere in February when a blood vessel burst in her brain
The lawyer of the younger mother Shelina Begum, 39, and father Mohammed Raqeeb, 45, a construction consultant
The couple's lawyers – who argued for five days last month at the High Court in London – say the ruling states that parents know best what care is appropriate for their child.
It contrasts sharply with the tragic cases of Charlie Gard and Alfie Evans, where judges have chosen the side of the NHS. Yesterday the hospital announced that it will not appeal.
& # 39; I'm still in shock, & # 39; Shelina, 39, told Mail at the time. & # 39; When the judge passed his judgment, I burst into tears. It is the first time that I let myself cry in public. I was overwhelmed. All stress and tension have just been poured out.
& # 39; We have waited more than three weeks for the verdict and it was terrible – even harder than when it all started. I personally cried every night. On Wednesday I was so petrified that I iced all night.
& # 39; I couldn't banish the fear that Tafida would get a death sentence. I kissed her goodbye and all I could say was: & # 39; Pray for life, darling. & # 39; & # 39;
& # 39; I knew that the judge had listened very carefully to all of our arguments and I have great faith in the legal system – I am a lawyer. But I was in such a state that it took seconds for the verdict to penetrate.
Her mother Shelina Begum (photo) and father Mohammed Raqeeb won a historical legal victory with which they can bring their little girl to Italy for treatment
& # 39; We have not been misled. We know that it is very unlikely that Tafida will ever be the same. But this gives her the best chance.
& # 39; She was such an energetic, happy girl with a big smile and a huge heart. I don't know if she will ever tear around with her father on her bike or whirl around the kitchen with her ballet steps.
& # 39; But I hope and pray that one day she will walk in my arms. Just her again & # 39; mommy & # 39; hearing it would be magical.
& # 39; No matter what happens – whatever adjustments we have to make – we will bring her home and love her.
Tafida is pictured in the hospital with her mother Shelina Begum and surrounded by whipping balloons. The parents were overjoyed to win their legal battle
& # 39; Her life is precious and our love for her is unconditional. It is not based on what she can or cannot do. & # 39;
Tafida was born with the rare and undiagnosed disease AVM (arteriovenous malformation), which causes a jumble of blood vessels with abnormal connections between the arteries and veins.
For eight months the family of Tafida had to fight through the courts to give her a chance to live.
Doctors at the specialized Gaslini Children's Hospital in Italy, who have studied her case and seen 11,000 photos, are convinced that they can offer treatment and are now ready to send an air ambulance to collect her.
Gaslini, on the northern Italian coast, is one of the best children's hospitals in Europe.
In the neurology department, Tafida receives an advanced rehabilitation program, including hydrotherapy and advanced robot technology, to help her walk again.
Shelina says: & # 39; Tafida will paddle in the sea and even swim if she is strong enough. . . She will feel the wind on her face. It will be the first time she has been in the fresh air since February. & # 39;
But the move will take a financial toll from the family – who have set up a crowdfunding page that has raised more than £ 35,000 so far.
Neither parent has been able to work for months and they are trying to raise £ 400,000 for treatment costs.
While they are in Italy, their 14-year-old son, who has not been named, will be left with relatives.
& # 39; It is not ideal, but he understands that it is necessary. He is so fond of his little sister that he even wanted to go to court & # 39 ;, says Shelina. & # 39; We will miss him very much. But he will see us fly over the weekend. & # 39;
Her parents have camped beside her for eight months and have the & # 39; pain & # 39; everyday because their daughter has only one percent chance of living
On February 8, Tafida was rushed to the hospital after collapsing just after 5 a.m. She told her mother that her head ached before she lost consciousness and that her 14-year-old brother was resuscitating while waiting for an ambulance.
Tafida underwent a seven-hour operation at King & # 39; s Hospital in London and was in a coma. The consultant was honest outside the operating room.
& # 39; He told us: & # 39; She has only one percent chance. Most likely she will die on the table & # 39; & # 39 ;, Shelina recalls. & # 39; We were terrified. & # 39;
But while Tafida survived, her condition was unpredictable.
Her heart stopped the morning after the operation. She went into a coma and the family was told that if she hadn't died before noon, she would die within 24 hours.
But to the delight of the family, a brain stem test showed that although Tafida had sustained a brain injury, she was not brain dead. & # 39; That was the best moment & # 39 ;, Shelina recalls.
After two weeks, Tafida opened her eyes for the first time. The family started investigating the condition. A birth defect, AVM is caused where blood vessels do not form correctly and can rupture.
In the brain, the effects are comparable to a major stroke. Approximately ten babies per year are affected in England, although the condition is only picked up later in life.
The family learned that AVM patients such as Tafida end up in a deep coma, but can slowly develop as the brain makes new connections.
Tafida was transferred to Royal London Hospital in April. In June the medical staff concluded that further treatment was useless. & # 39; They put us down and said: & # 39; See, we take the decision away from you. More treatment is useless & # 39; & # 39 ;, Shelina recalls. & # 39; They would take out her breathing tube and it would be. & # 39;
The couple spent eight months camping next to Tafida. Their & # 39; home & # 39; is a single room with shared facilities in a house cared for by a good cause. Shelina has not been home since February.
& # 39; Most days I am with Tafida at 8 o'clock & # 39; "Until midnight when Mohammed takes over," she says. & # 39; If I can't be there – because of seeing lawyers – the family comes in. We don't want her to ever wake up and feel scared or wonder: & # 39; Where are Mom and Dad? & # 39;
& # 39; This has been a victory for all parents. It shows that the rights of parents are not being taken away. And it recognizes the value of disabled children. Tafida may be severely disabled, but her life is still of value. & # 39;
For more information or to donate to the fund, click here.
. (TagsToTranslate) Dailymail (t) news (t), Italy (t) london