Boston Children’s Hospital sues Saudi Prince for $ 3.5 million in medical bills he allegedly promised to pay for a 2-year-old girl with a rare genetic condition
- Boston Children’s Hospital sues prince Abdelilah bin Abdelaziz bin Abdulrahman Al Faisal Al Saud for $ 3.5 million in unpaid medical bills
- The prince allegedly offered to pay charitable for the care of a two-year-old Saudi girl being treated for a rare genetic movement disorder
- The only treatment is one of the most expensive in the world
- After a year and a half, the prince reportedly paid only $ 750,000
Boston Children’s Hospital sues a Saudi prince for $ 3.5 million in medical bills for a child whose care he offered to pay.
Prince Abdelilah bin Abdelaziz bin Abdulrahman Al Faisal Al Saud is charged with alleged accusations concerning a two-year-old Saudi girl.
The little girl suffers from type 1 spinal muscle atrophy, a rare and devastating genetic movement disorder, and her family could not afford the treatment, which was only available in the US.
Her ongoing treatment cost around $ 4 million, and yet the prince did not live up to his heroic promise to pay the full sum, according to the Boston Children’s Hospital lawsuit against him on Tuesday.
Boston Children’s Hospital (photo) sues a Saudi prince for $ 3.5 million in medical bills after allegedly admitting a two-year-old girl with a movement disorder on the promise that he would sponsor her care – but since November 2017 he has only paid $ 750,000
The prince – as he is called throughout the trial – and his personal physician agreed to sponsor the patient, who was only admitted to Boston Children’s under that agreement, the suit says.
Spinal muscle atrophy (SMA) is a rare genetic disease that affects approximately one in every 6,000 babies born.
In the past, SMA was often considered fatal for children around the age of this little girl – two years old – but it is now considered a disease on a spectrum, and some patients can live a long and relatively independent life, while others are poorer can be forecasts.
People with the disease are born without a protein that causes motor neurons – nerve cells that transmit messages from the brain through the spinal cord to control muscles – to die.
SMA has the most dramatic impact on muscles close to the core of the body – such as the shoulders, hips, and thighs.
With the mildest forms, patients can simply be weak in those areas.
In the worst case, the disease can eliminate the muscles needed for breathing and swallowing.
The only treatment approved by the FDA for the SMA, Spinraza, received the green light from the agency in 2016.
Spinraza is one of the most expensive drugs in the world, with an injection of $ 125,000.
Children and adults should receive six injections in the first year of treatment for a total of $ 750,000. The treatment costs an estimated $ 350,000 each year thereafter.
The drug is not available in Saudi Arabia.
So far, the two-year-old injections and other care has raised $ 4 million and more, since being admitted in November 2017, the hospital’s lawsuit claims.
Dr. Philip Camp, who is said to be friendly with and treat the prince in Brigham and the Boston Women’s Hospital, assured Boston Children’s that the prince was “completely serious about personally paying the costs and resources.”
According to the judicial document, the Prince and his alleged personal physician and “agent”, Dr. Hamdy, only paid $ 750,000 of the girl’s increasing medical bills.
“[Boston Children’s Hospital] has continued to care for this patient at a high cost and burden for BCH. BCH aims for immediate payment of all unpaid bills with interest in order to continue serving Jane Doe and the other patients under his care, “the suit says.
And it continues to do so, but the time is running out before the Prince will have to pay or undergo the jury process that the hospital demanded in the court case.