Boston Children's & # 39; s Hospital prosecutes Saudi prince for $ 3.5 million in medical bills he would have promised to pay for a 2-year-old girl with a rare genetic condition
- Boston Children's & # 39; s Hospital sues Prince Abdelilah bin Abdelaziz bin Abdulrahman Al Faisal Al Saud for $ 3.5 million in unpaid medical bills
- The prince is said to have volunteered to pay for the care of a two-year-old Saudi girl being treated for a rare genetic movement disorder
- The only treatment is one of the most expensive in the world
- After a year and a half, the prince reportedly paid only $ 750,000
Boston Children's & # 39; s Hospital sues a Saudi prince for $ 3.5 million in medical bills for a child whose care he offered to pay.
Prince Abdelilah bin Abdelaziz bin Abdulrahman Al Faisal Al Saud is charged with evading charges related to a two-year-old Saudi girl.
The little girl suffers from type 1 spinal muscular atrophy, a rare and devastating genetic movement disorder and her family could not afford the treatment, which was only available in the US.
Her ongoing treatment cost around $ 4 million, and yet the prince has not fulfilled his heroic promise to pay the full amount, according to the lawsuit that Boston Children & # 39; s Hospital filed against him on Tuesday.
Boston Children's & # 39; s Hospital (photo) sues a Saudi prince for $ 3.5 million in medical bills after allegedly having a two-year-old girl with a movement disorder who was admitted on the promise of sponsoring her care – but since November 2017, he is only paid $ 750,000
The prince – as he is called throughout the trial – and his personal physician agreed to sponsor the patient, who was admitted to Boston Children & # 39; s only in light of that agreement, the suit says.
Spinal muscular atrophy (SMA) is a rare genetic disorder that affects approximately one in 6,000 born babies.
In the past, SMA was often considered fatal for children around the age of this little girl – two years old – but now it is considered a disease in a spectrum, and some patients can live a long and relatively independent life while others may poorer are forecasts.
People with the disease are born without a protein that causes motor neurons – nerve cells that carry messages from the brain through the spinal cord to control muscles – to die.
SMA tends to affect the muscles close to the core of the body – such as the shoulders, hips and thighs – most dramatically.
With the mildest forms, patients can simply be weak in those areas.
In the most serious case, the disease can eliminate the muscles needed for breathing and swallowing.
The only FDA-approved treatment for the SMA, Spinraza, received the green light from the agency in 2016.
Spinraza is one of the most expensive drugs in the world, with a $ 125,000 injection.
Children and adults must receive six injections in the first year of treatment, for a total of $ 750,000. It is estimated that the treatment then costs $ 350,000 annually.
The drug is not available in Saudi Arabia.
So far, the two-year injections and other care have spent $ 4 million, and since being admitted in November 2017, the hospital is claiming the lawsuit.
Dr. Philip Camp, who is supposedly friendly to and treating the prince at Brigham and the Boston Women's Hospital, assured Boston Children that the prince seriously thought it would pay the costs personally and had the means.
According to the court document, the prince and his alleged personal physician and & # 39; agent & # 39 ;, Dr. Hamdy, paid only $ 750,000 to the little girl's medical bills.
& # 39; (Boston Children's & # 39; s Hospital) continued to cause major costs and burdens for BCH for this patient. BCH strives for immediate payment of all unpaid bills with interest to make it possible to continue to serve Jane Doe and the other patients in her care, & says the suit.
And that goes on, but the time runs out before the prince will have to pay or try the jury who demanded the hospital in the court case.
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