Home Entertainment Celine Dion reveals she wore a coat for ‘nerve-wracking’ appearance at Grammys 2024 in order ‘to hide’… amid battle with stiff person syndrome

Celine Dion reveals she wore a coat for ‘nerve-wracking’ appearance at Grammys 2024 in order ‘to hide’… amid battle with stiff person syndrome

by Merry
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Celine Dion, 56, revealed the reason she decided to wear a coat while making a surprise appearance at the 2024 Grammys in February; seen on the stage of the event

Celine Dion revealed the reason she decided to wear a coat while making a surprise appearance at the 2024 Grammys in February.

The star, 56, surprised her fans when she appeared at the ceremony amid her battle with incurable stiff person syndrome to present Taylor Swift with the album of the year award.

And now Celine has shared why she chose to wear a mustard yellow Valentino coat over her dress at the event.

“It made me feel better for a moment to hold on to this coat, to hide a little bit from all these little things,” she said. Fashion in a recent Life in Looks series.

“It was very stressful, but at the same time, a great honor,” she said of her appearance. ‘That magic. That emotion. See the fans, see the crowd. See show business again.

Celine Dion, 56, revealed the reason she decided to wear a coat while making a surprise appearance at the 2024 Grammys in February; seen on the stage of the event

Celine Dion, 56, revealed the reason she decided to wear a coat while making a surprise appearance at the 2024 Grammys in February; seen on the stage of the event

The My Heart Will Go On singer was styled by Law Roach for the night. He is known for his work with Euphoria star Zendaya.

“I thought, ‘Can you go on stage in a coat?’ Oh yeah! “You can do whatever you want fashion-wise, have a good time, wear that coat, own that coat, do it,” Celine said of her decision to wear the coat.

While talking about wanting to ‘hide’ in her coat, the five-time Grammy winner began singing the lyrics to her 2019 song ‘Imperfections.’

‘I have my own imperfections. I got my thing… I got my thing, complete…’ she sang in the clip, ‘So we did it.’

The appearance was one of the few public ones he made in recent years, after he was diagnosed with the rare neurological disorder stiff person syndrome (SPS) in 2022.

When she went on stage she was accompanied by her son René-Charles Angélil, 23 years old.

‘It cost me a lot, a lot. But my son René Charles —RC— came and gave me his support.”

“And giving the award, album of the year, to Taylor Swift, was an honor because she’s having the time of her life and I’m the one giving it to her,” Dion added.

The star surprised fans when she appeared at the ceremony amid her battle with incurable stiff person syndrome to present Taylor Swift with the album of the year award.

The star surprised fans when she appeared at the ceremony amid her battle with incurable stiff person syndrome to present Taylor Swift with the album of the year award.

1713853239 793 Celine Dion reveals she wore a coat for nerve wracking appearance

“It made me feel better for a moment to hold on to this coat, to hide a little bit from all these little things,” she told Vogue in a recent Life in Looks series.

1713853240 988 Celine Dion reveals she wore a coat for nerve wracking appearance

“It was very stressful, but at the same time, a great honor,” she said of her appearance. ‘That magic. That emotion. See the fans, see the crowd. To see the world of the show again’

Celine looked stunning in a chiffon dress that night.

Celine looked stunning in a chiffon dress that night.

The star was seen posing happily with Taylor, despite the singer receiving backlash from fans who accused her of

The star was seen posing happily with Taylor, despite the singer receiving backlash from fans who accused her of “ignoring” Celine when she accepted her award.

She also commented on how she received a standing ovation when the crowd saw her: “It’s always very, very touching when you get a standing ovation.”

During the ceremony, Swift received criticism for being “disrespectful” for “ignoring” Celine while accepting the award for Album of the Year, which Celine herself won 27 years ago.

When Dion presented her with the award, fans pointed out that Swift didn’t recognize her and didn’t make eye contact, and she quickly looked back to celebrate the moment with her collaborators.

However, there seemed to be no hard feelings as the iconic couple posed happily backstage.

The hitmaker announced in December 2022 that she had been diagnosed with stiff person syndrome, an extremely rare disorder that causes the muscles in the torso and limbs to alternate between spasms and stiffness. She revealed that she would be quitting acting.

Celine opened up about her health battle in a rare interview with Vogue France on Monday when he made his big return to show business.

When asked how he was doing, he replied: “I’m fine, but it’s a lot of work.” I’m taking it one day at a time.

Explaining how she manages the condition, she explained: ‘Five days a week I do sports, physical and vocal therapy. I have to learn to live with it now and stop questioning myself.

The hitmaker announced in December 2022 that she had been diagnosed with stiff person syndrome and said she would stop acting (pictured in 2015).

The hitmaker announced in December 2022 that she had been diagnosed with stiff person syndrome and said she would stop acting (pictured in 2015).

‘At first I asked myself: why me? How did this happen? What have I done? Is this my fault? Life doesn’t give you any answers. You just have to live it!’

Celine added: ‘I have chosen to work with my whole body and soul, from head to toe, with a medical team. I want to be the best I can be. My goal is to see the Eiffel Tower again!’

Celine has also revealed whether she will ever take the stage to perform again.

In her heartfelt response, she replied: ‘I can’t answer that… Because for four years I’ve been telling myself that I’m not going back, that I’m ready, that I’m not ready.

“As things stand, I can’t sit here and tell them, ‘Yes, four months from now.'” I don’t know… My body will tell me.’

The star’s struggle to continue her career will be chronicled in the new documentary I Am: Celine Dion.

The new documentary, captured over more than a year of filming, follows the star as she struggles to continue her normal life and career amid her diagnosis, promising that the condition “won’t define her” while promising to raise awareness.

Dion said in a statement: “These past few years have been very challenging for me, the journey from discovering my condition to learning to live with it and manage it, but not letting it define me.”

The star's struggle to continue her career will be chronicled in the new documentary, I Am: Celine Dion, premiering June 25, 2024.

The star’s struggle to continue her career will be chronicled in the new documentary, I Am: Celine Dion, premiering June 25, 2024.

‘As the road to resuming my acting career continues, I have realized how much I have missed being able to see my fans.

“During this absence, I decided that I wanted to document this part of my life, to try to raise awareness about this little-known disease and help other people who share this diagnosis.”

A synopsis reads: “From visiting her couture tour wardrobe and personal effects to spending time in the recording studio, the documentary captures the never-before-seen private life of a global megastar.

“A moving, energetic and poetic love letter to music, I Am: Celine Dion captures more than a year of filming as the legendary singer navigates her journey toward an open and authentic life in the midst of illness.”

I Am: Celine Dion will be released on Tuesday, June 25, 2024.

STIFF PERSON SYNDROME: INCURABLE NEUROLOGICAL CONDITION THAT BLOCKS THE BODY

Stiff person syndrome is an extremely rare disorder that causes the muscles of the torso and extremities to alternate between spasms and stiffness.

Estimates suggest it affects around 70 people in the UK and 330 in the US and remains poorly understood. Approximately twice as many women as men suffer from it.

Progressive disease causes patients’ stiffness to increase over time and may lead to them needing to use a wheelchair.

There are usually three types of syndrome:

  • Classic person man syndrome: When stiffness and spasms occur around the back and stomach, and occasionally in the thighs and neck. It can cause curvature of the back over time.
  • Stiff limb syndrome: spasms especially affect the legs and feet, sometimes causing them to stay fixed in place. The hands may also be affected.
  • Stiff and shaken person syndrome: The rarest and most aggressive form, which includes symptoms of the others and also affects the head and eyes.

Experts do not know exactly what is behind the disease.

But they believe it may be caused by an autoimmune reaction, when the body attacks its own nerve cells that control muscle movement.

About 40 percent of sufferers also have type 1 diabetes, another autoimmune disease. Type 1 diabetes is particularly associated with classic person syndrome.

Other autoimmune conditions such as vitiligo, which causes white patches on the skin, and pernicious anemia are also associated with it.

It is also more common in people with breast, lung, kidney, thyroid or colon cancer, as well as lymphomas, but researchers still don’t know why.

In stiff person syndrome, the immune system attacks a protein that helps produce gamma-aminobutyric acid (GABA), which regulates motor neurons, the nerves that control movement.

Low levels of GABA cause neurons to fire continuously when they shouldn’t, causing twitching and stiffness.

What are your symptoms?

The main symptoms caused by stiff person syndrome are spasms and stiffness of the torso and extremities.

Spasms can be triggered by loud noises, and the condition also causes increased sensitivity to sound.

Touch and emotional distress may also be felt more intensely as a result of this condition.

The spasms can be so severe that they cause people to fall or cause difficulty walking and other disabilities.

Stress and anxiety also tend to be higher in those who suffer from this condition, especially due to the unpredictability of the spasms.

Lack of GABA (which regulates anxiety) in your system also affects mental health.

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