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Baby born with a swollen head defies doctors who have told his mother to terminate the pregnancy

A four-week-old baby, born with a swollen football-sized head, defies doctors who told his mother to end her pregnancy because he would not survive the birth.

Lorenzo Pontone was diagnosed with severe hydrocephalus, a condition that causes fluid to build up in the skull, causing the brain to swell, on his mother Nikky Lewis’ scan for 20 weeks.

Ms. Lewis, 28, and partner Fernando Pontone, 33, of Huddersfield, West Yorkshire, were offered a full termination offer because there was a high probability that Lorenzo would be deaf, blind, unable to move and prone to attack. are born.

But mother at home, Mrs. Lewis, insisted on keeping little Lorenzo, and he had to be delivered by the C-section after 36 weeks because his head was growing so fast.

And in addition to needing a colostomy pouch because he was born without an anus, an MRI scan taken after birth showed that he had much less brain matter than he should, meaning he’s only kept alive by his brain stem.

Since then, however, he has begun to defy the odds by breathing alone and is now able to close his eyes when he couldn’t after his first birth.

Ms. Lewis said she felt that his birth was “intended” because she became pregnant while using contraception.

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Four-week-old baby Lorenzo Pontone was born with a huge swollen head, but defies doctors who told his mother to end her pregnancy because he would not survive the birth

Four-week-old baby Lorenzo Pontone was born with a huge swollen head, but defies doctors who told his mother to end her pregnancy because he would not survive the birth

Lorenzo was diagnosed with severe hydrocephalus, a condition that causes fluid to build up in the skull, causing the brain to swell, on his mother Nikky Lewis' 20-week scan. In the photo: Lorenzo with Mrs. Lewis and his father Fernando Pontone

Lorenzo was diagnosed with severe hydrocephalus, a condition that causes fluid to build up in the skull, causing the brain to swell, on his mother Nikky Lewis' 20-week scan. In the photo: Lorenzo with Mrs. Lewis and his father Fernando Pontone

Lorenzo was diagnosed with severe hydrocephalus, a condition that causes fluid to build up in the skull, causing the brain to swell, on his mother Nikky Lewis’ 20-week scan. In the photo: Lorenzo with Mrs. Lewis and his father Fernando Pontone

28-year-old Nikky and partner Fernando Pontone, 33, of Huddersfield, West Yorkshire, were offered a full termination as Lorenzo was likely to be born deaf, blind, unable to move and prone to seizures

28-year-old Nikky and partner Fernando Pontone, 33, of Huddersfield, West Yorkshire, were offered a full termination as Lorenzo was likely to be born deaf, blind, unable to move and prone to seizures

28-year-old Nikky and partner Fernando Pontone, 33, of Huddersfield, West Yorkshire, were offered a full termination because Lorenzo was likely to be born deaf, blind, unable to move and prone to seizures

She said, “I don’t believe in termination and I used birth control when I got pregnant, so I felt it was meant to be.

“While we were thinking about it because doctors said it was best to do, we decided to let nature take its course because he was halfway there.

As the pregnancy progressed, the doctors told us that he was at high risk of being stillborn or not surviving after birth – they said he would be blind, would not walk, be deaf, and have seizures.

“We couldn’t understand how they could tell from a scan.”

But stay-at-home mom Mrs. Lewis insisted on keeping little Lorenzo and he had to be delivered after 36 weeks per c-section because his head was growing so fast

But stay-at-home mom Mrs. Lewis insisted on keeping little Lorenzo and he had to be delivered after 36 weeks per c-section because his head was growing so fast

But stay-at-home mom Mrs. Lewis insisted on keeping little Lorenzo and he had to be delivered after 36 weeks per c-section because his head was growing so fast

Ms. Lewis said, “I don’t believe in termination and I used birth control when I got pregnant so I felt it was meant to be”

Lorenzo has since defied the odds by breathing alone and can now close his eyes when he couldn't after his first birth

Lorenzo has since defied the odds by breathing alone and can now close his eyes when he couldn't after his first birth

Lorenzo has since defied the odds by breathing alone and can now close his eyes when he couldn’t after his first birth

The hydrocephalus caused the ventricles (cavities) in Lorenzo’s brain to become severely enlarged, a condition known as severe ventriculomegaly.

This also caused a break in his brain.

According to the Hydrocephalus Association, hydrocephalus affects about one in 1,000 babies, making it as common as Down syndrome and more common than spina bifida or brain tumors.

It is caused when fluid gets trapped in the brain and builds up, increasing pressure in the skull, flattening the surrounding brain tissue.

In some cases, this can cause the head to grow steadily in size, convulsions, and brain damage. It can be fatal if left untreated.

In the womb, Lorenzo was diagnosed with severe ventriculomegaly, enlargement of the brain's ventricles, rupturing part of his brain, causing the hydrocephalus

In the womb, Lorenzo was diagnosed with severe ventriculomegaly, enlargement of the brain's ventricles, rupturing part of his brain, causing the hydrocephalus

In the womb, Lorenzo was diagnosed with severe ventriculomegaly, enlargement of the brain’s ventricles, rupturing part of his brain, causing the hydrocephalus

An MRI scan taken after he was born showed that he had much less brain matter than he should have and is therefore only kept alive by his brain stem. Pictured: Doctors sewed the corners of Lorenzo's eyes so he could close them

An MRI scan taken after he was born showed that he had much less brain matter than he should have and is therefore only kept alive by his brain stem. Pictured: Doctors sewed the corners of Lorenzo's eyes so he could close them

An MRI scan taken after he was born showed that he had much less brain matter than he should have and is therefore only kept alive by his brain stem. Pictured: Doctors sewed the corners of Lorenzo’s eyes so he could close them

The fluid in his brain now starts to drain after doctors insert a tube known as a shunt that drains the excess fluid into his abdomen

The fluid in his brain now starts to drain after doctors insert a tube known as a shunt that drains the excess fluid into his abdomen

The fluid in his brain now starts to drain after doctors insert a tube known as a shunt that drains the excess fluid into his abdomen

And an MRI scan taken after his birth showed that it is only Lorenzo’s brain stem that controls the basic functions of the body, such as breathing and swallowing, which keeps him alive.

But the fluid in his brain is now starting to dissipate after doctors put in a tube known as a shunt that drains the excess fluid into his belly.

This means that the swelling on his head will decrease over time.

Mr. Pontone said, “I am so glad that we did not continue with a termination.

“We thought about it because we thought it could be difficult and we didn’t know if we could get through it, but he’s so tough.

An MRI scan taken after birth showed that he had much less brain matter than he should and is therefore only kept alive by his brain stem

An MRI scan taken after birth showed that he had much less brain matter than he should and is therefore only kept alive by his brain stem

An MRI scan taken after birth showed that he had much less brain matter than he should and is therefore only kept alive by his brain stem

Lorenzo was also born without an anus and therefore needs a colostomy bag for life

Lorenzo was also born without an anus and therefore needs a colostomy bag for life

Lorenzo was also born without an anus and therefore needs a colostomy bag for life

The fluid in his brain now starts to drain after doctors insert a tube known as a shunt that drains the excess fluid into his abdomen

The fluid in his brain now starts to drain after doctors insert a tube known as a shunt that drains the excess fluid into his abdomen

The fluid in his brain now starts to drain after doctors insert a tube known as a shunt that drains the excess fluid into his abdomen

“I wouldn’t be able to deal with what he’s been through.

“As soon as we saw him, we fell in love with him. I couldn’t stop trembling, we cried out our eyes.

“We are so proud of him. Everything doctors said he couldn’t do, he’s done. ‘

WHAT IS HYDROCEPHALUS?

Hydrocephalus is an accumulation of fluid in the brain that can damage tissue.

Aside from an abnormally large head, other symptoms can include headache, nausea, vomiting, confusion, and vision problems.

The cause of Hydrocephalus is usually unknown, but may be due to brain cavity problems or an underlying health problem affecting blood flow, such as heart disease.

It can also be obtained from brain damage from a head injury, stroke, or tumor.

Treatment is shunt surgery, in which a thin tube is implanted in the brain to drain excess fluid to another part of the body, where it can be absorbed into the bloodstream.

If left untreated, hydrocephalus can be fatal due to increased pressure that compresses the brain stem, which is responsible for regulating heart rate and breathing.

A patient’s prognosis after surgery depends on their age and general health.

Source: Brain and Spine Foundation

Ms. Lewis said it was “very emotional” when their son finally cried after waiting ten minutes when he was born.

“We had a planned C-section after 36 weeks because Lorenzo’s head got bigger and bigger so quickly,” she said.

“When he was born, he didn’t cry at first and we just waited for about 10 minutes.

“We were so relieved when he did that and it was very emotional. I thought he wouldn’t make it.

“At first he couldn’t blink and his eyes were constantly open, so the doctors had to stitch up the corners of his eyes.

“Now he can blink and open his eyes, proving that many doctors are wrong.”

Ms. Lewis and Mr. Pontone do not know how the condition will affect their son in the long run, but said it is a miracle that he survived after birth.

The little boy has been introduced to his siblings Koby, 12, Lily, 10, Thomas, eight, Bella, five and Gino, 10 months.

Ms. Lewis said, “We’ll just take it day by day and we’ll figure it out when he hits his milestones.

“He’s brilliant, he’s very demanding on food, and his siblings just love him.

“We have a lot to learn because he will take medicines for life.

“We’ll have to learn how to change his colostomy bag and how to feed him, but it’s all worth it.”

The couple has now set up a fundraising page because Mr Pontone has been forced to quit his job at a supermarket to take care of their other five children.

Ms. Lewis and Mr. Pontone don't know how the condition will affect their son in the long run, but said it's a miracle that he survived after birth

Ms. Lewis and Mr. Pontone don't know how the condition will affect their son in the long run, but said it's a miracle that he survived after birth

Ms. Lewis and Mr. Pontone don’t know how the condition will affect their son in the long run, but said it’s a miracle that he survived after birth

Ms Lewis said, “We’ll just take it day by day and we’ll figure it out when he hits his milestones.”

The couple take turns staying with Lorenzo in the hospital.

Father Fernando added, “We just want to say that you don’t always listen to what doctors say, because they are not always right.

“I have proof – he lives and kicks here.”

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